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Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.
… The Social and Behavioral Research Branch (SBRB) Seminar … whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community. … Social and Behavioral Research Branch Seminar Series … whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community. …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. However, at this time the NIH GDS Policy and NHGRI implementation plans apply particularly to … with other data sets. Projects that are subject to the GDS Policy NHGRI finds value in and encourages the sharing of …
Event
November is Family Health History Awareness Month! To celebrate, the National Human Genome Research Institute will host several engagement events over social media on Wednesday, November 17.
… Institute will host several engagement events over social media on Wednesday, November 17. We encourage you and … Family Health History Social Media Campaign … Institute will host several engagement events over social media on Wednesday, November 17. … Institute will host several engagement events over social media on Wednesday, November 17. …
Data Sharing Policies
Sample informed consent language, aligned with each of the informational elements of consent for genomic data sharing (GDS) outlined by NIH as important to convey, in language understandable to prospective participants.
… such as your name, address, telephone number, or social security number, it may be possible to identify you … access to your own information. - Credit: NIH CoC Policy Page … Phenotypic Data Subject to the NIH Genomic Data Sharing Policy … It's also important to remember that the GDS Policy does not prevent or disqualify participants from …
Media Advisory
On January 25, 2023, the National Human Genome Research Institute will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their benefits, limitations and potential for misuse.
… of Health will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their … Social genomics is a field of emerging research that suggests … scientists can use genomic variation to understand complex social behavior. Panelists will discuss genetics and genomics …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… of the research participants (see Genomic Data Sharing Policy below). In addition, NIH issues Certificates of … Database . The Common Rule Published in 1991, the Federal Policy for the Protection of Human Subjects, also known as … for Genomics Research Resource . NIH Genomic Data Sharing Policy The NIH Genomic Data Sharing Policy sets guidelines …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy emphasizes the importance of good data management … data to explore new frontiers of discovery. Though the policy was published two years ago, many may still be unsure …
Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
… M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research Branch, National Human Genome … Dr. Koehly's research focuses on developing and applying social network methods to the study of complex social systems, such as families and communities. Her …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data management practices would help support NIH's … NIH chief of staff and associate director for science policy, and NHGRI director, Dr. Eric Green. Additionally, …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … journals PubMed Central (Note: See the Public Access Policy regarding the NIH requirement to submit final, … of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy . …