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Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… Policy Issues …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… that concerns about enhancement should be managed through policy and regulation. Lastly, commenters on the issue are … Policy Issues …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… Building a vertically integrated genomic learning health system: The biobank at the Colorado … Colorado; that grant is part of the Investigator-Initiated Genomic Medicine Research Program ( PAR-18-735 ). … recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… it does have restrictions through legislation and NIH policy. The Appropriations Act of 2016, passed in December … Policy Issues …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… A wide range of genomic research studies need participants, each with … important to consider for genomics research since genomic information is hereditary and may reveal information … be returned to you or your family members. For example, genomic testing results could tell you information about …
Genomics and Medicine
The NHGRI Genomic Medicine Working Group has compiled a list of interesting advances.
… The NHGRI Genomic Medicine Working Group  (GMWG) compiles a list of … interesting advances and helpful educational resources in genomic medicine. To submit notable accomplishments for … GMWG published the following notable accomplishments: 2023 Genomic Medicine Year in Review 2022 Genomic Medicine Year in …
Careers & Training
The Genomics and Public Service Fellowship Program continues post-graduate fellowship programs in public policy and education and engagement and adds two new programs – a post-graduate communications fellowship and a post-baccalaureate fellowship.
… program provides training and career development in public policy, education and engagement, science communications and … and anticipated career path. The Genetics and Public Policy Fellowship is for individuals interested in the … advance genetics and genomics research, literacy, public policy and workforce development. This fellowship is ideal …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society​ at the National Human Genome Research Institute.
… related to the ethical, legal and social implications of genomic research. Dr. Kaufman serves as the primary ELSI … Kaufman focuses on ELSI Research Program grants related to Genomic Healthcare and the integration of genomic information and technologies into clinical care. He …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… Policy Issues …
The Genomics Landscape
In the July 2020 edition of The Genomics Landscape, NHGRI Director Eric Green recalls the White House event announcing the draft human genome sequence.
… the NHGRI ELSI Research Program, and discussion of a policy on review of ISCC materials and dissemination. The … (ACMG) recently published guidance on incorporating genomic data into electronic health records (EHRs). EHRs are … patients and doctors and for patient health overall. As genomic information about patients becomes more and more …