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News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … is collected from participants as part of federally-funded research. … who conduct sensitive, health-related human subjects research be issued Certificates of Confidentiality . …
Research at NHGRI
The Center for Precision Health Research, formerly Medical Genomics and Metabolic Genetics Branch, studies how health and disease are related to genetic, genomic and metabolic variation.
… The investigators in the Center for Precision Health Research (CPHR) develop and evaluate cutting edge genomic and informatic tools to improve the diagnosis, … Research Program to foster the development of cutting edge genomic and informatic approaches to health. The …
News Release
Researchers with support from NIH will conduct research into the genetic underpinnings of Alzheimer's disease.
… support from the National Institutes of Health to conduct research into the genetic underpinnings of Alzheimer's … medical centers that have been at the forefront of research in Alzheimer's genetics: University of Pennsylvania, … participants free of the disorder. They also will study genomic data from 111 large families, a portion of which are …
News Release
NIH expands its Encyclopedia of DNA Elements Project, which is creating a fundamental genomics resource scientists to study human health and disease.
… genome sequences and to understand the consequence of genomic variation," said Elise Feingold, Ph.D., a program … genome, and to analyze the enormous database of generated genomic information. The data and tools generated by ENCODE … synthesizes the data into an encyclopedia for use by the research community. Pending the availability of funds, NHGRI …
Research Training
The Clinical Center Genomics Opportunity promotes precision medicine and development of infrastructure to support clinical genomics at the NIH Clinical Center.
… capabilities within their Institutes to effectively use genomic data in clinical research and clinical care. The NIH Office of Intramural … with a vision that this will evolve toward comprehensive genomic evaluations in the future. To initiate this program, … and consent for the study should include permission for genomic sequencing, dbGaP data deposition, permission for …
Research Funding
Frequently asked questions for Investigator-Initiated Research on Genetic Counseling Processes and Practices FOAs (RFA-HG-20-048 and RFA-HG-20-049).
… experience need(s) to be an integral part of the research team including being involved in research design, … applications that enhance genetic counseling strategies in genomic medicine which involves including genetic information … may be proposed as long as it is broadly applicable to genomic medicine as a field (see related question #6).  If …
Diversity Center
Tuskegee University establishes the Carver Genomic Research Center.
… Carver genomic Research Center (CGRC) at Tuskegee University (TU), seeks to … a globally renowned center of emerging excellence in genomic medicine with a focus on health disparities. The Center aims to enhance research, education, and workforce capacity in the field of …
News Release
20 papers published online in 2014 highlight research on DNA biorepositories and electronic medical records to better understand the genomics of disease.
… of nearly 20 papers published online in 2014 highlights research on the use of DNA biorepositories and electronic … Network. eMERGE is supported by the National Human Genome Research Institute (NHGRI), part of the National Institutes … patient's data and disease characteristics with his or her genomic information collected from stored tissue specimens in …
The Genomics Landscape
In the July 2023 edition of The Genomics Landscape, NHGRI Director Eric Green describes the evolution of the NHGRI Intramural Research program over the last three decades talks about its future in conducting truly exceptional basic, translational, and clinical genomics research.
… by many genetic factors and disease development.  This research was funded by NIH with a grant to Steven Henikoff, … Hutchinson Cancer Center; that grant is part of the NIH Research Project Grant Program ( PA-18-484 ). … by the recent addition of the Future Leaders Advancing Genomic Sciences and Health Innovation (FLAGSHIP) …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… federal agency responsible for biomedical and behavioral research and research training. As such, it is accountable to Congress and … the general public for responsible stewardship of federal research dollars. Sound management of research funds requires … Policies and guidance regarding research funding from the National Human Genome Research …