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Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… Policy Issues …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… that concerns about enhancement should be managed through policy and regulation. Lastly, commenters on the issue are … the approaches, objectives and global society. Brief Funct Genomics, 16(1), 46-56. doi:10.1093/bfgp/elv053 [8] Park, A. … Policy Issues …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… As genomics advances, relevant legislation must advance with it, such as new laws related to the use of genomics in healthcare and protections that preserve privacy … recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… it does have restrictions through legislation and NIH policy. The Appropriations Act of 2016, passed in December … Policy Issues …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific … consideration that is especially important to consider for genomics research since genomic information is hereditary and … and family relationships. Is it safe to participate in genomics research? Research participants are protected by a …
Genomics and Medicine
The NHGRI Genomic Medicine Working Group has compiled a list of interesting advances.
… Milestones In Medicine, Clinical Implementation Of Genomics, Pharmacogenomics, Oncology Sequencing, … Genomics and Medicine …
Careers & Training
The Genomics and Public Service Fellowship Program continues post-graduate fellowship programs in public policy and education and engagement and adds two new programs – a post-graduate communications fellowship and a post-baccalaureate fellowship.
… and substantially expands the organizations’ joint genomics fellowship programs. The Genomics and Public Service Fellowship Program recognizes the … program provides training and career development in public policy, education and engagement, science communications and …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society at the National Human Genome Research Institute.
… Dave Kaufman, return of results policy, ethical legal and social implications, genomic … Dave Kaufman, return of results policy, ethical legal and social implications, genomic … Dr. Dave Kaufman is a program director Division of Genomics and Society at the National Human Genome Research …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… Building a Sound Legal Foundation for Translating Genomics into Clinical Application” (grant #: R01HG008605 ; … Policy Issues …
The Genomics Landscape
In the July 2020 edition of The Genomics Landscape, NHGRI Director Eric Green recalls the White House event announcing the draft human genome sequence.
… past few months, NHGRI staff will continue pursuing our genomics-driven mission, whether working remotely from home … findings of sexual harassment. Last month’s issue of The Genomics Landscape featured NHGRI efforts to develop a plan for substantially increasing the diversity of the genomics workforce in the United States. This included …