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Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
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Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
… creating targeted mutations to the genome. 5 Large-scale genomics projects that once took many years and tens of … Policy Issues …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… The Genomics and Society Working Group provides advice on short- and long-range planning and priority setting for genomics and society activities at the National Human Genome … The NHGRI Genomics and Society Working Group was established in 2012 as … in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human … from human sources, such as specimens and cell lines. The policy applies to NHGRI-funded research that will generate …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… from home. If you are seeking some virtual connections to genomics, I would like to offer some “remote learning” … Director) and I answered questions about bioethics and genomics research on Twitter as part of #AskDrGenome . Meanwhile, the NHGRI History of Genomics Program continues to showcase oral history …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… NHGRI's Table of State Statutes Related to Genomics provides the total number of states that have … Building a Sound Legal Foundation for Translating Genomics into Clinical Application” (grant #: R01HG008605 ; … Genomics Legislation, Human Genome Project, Genetic …
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
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Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… that concerns about enhancement should be managed through policy and regulation. Lastly, commenters on the issue are … the approaches, objectives and global society. Brief Funct Genomics, 16(1), 46-56. doi:10.1093/bfgp/elv053 [8] Park, A. … Policy Issues …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… As genomics advances, relevant legislation must advance with it, such as new laws related to the use of genomics in healthcare and protections that preserve privacy … recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… it does have restrictions through legislation and NIH policy. The Appropriations Act of 2016, passed in December … Policy Issues …