Search Results
Clinical Research
The Protocol Service Center provides assistance in the development and administration of study protocols requiring NIH Institutional Review Board approval.
… and staff in the development and administration of study protocols that require NIH Institutional Review … NHGRI PSC is staffed by protocol navigators with knowledge of the protocol review cycle and expertise in Institute and … the NIHIRB, the NHGRI Bioethics Core, and the NIH Office of Human Subjects Research Protections (OHSRP) to create a …
Talking Glossary
Scientific racism is a historical pattern of ideologies that generate pseudo-scientific racist beliefs.
… racism. Scientific racism is a historical pattern of ideologies that generate pseudo-scientific racist beliefs. … racism. Scientific racism is a historical pattern of ideologies that generate pseudo-scientific racist beliefs. … in the 19th and early 20th centuries were proponents of such ideologies. By the mid-20th century, …
Clinical Research
The Institutional Review Board (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes. … Review Board Office (IRBO) located within the Office of Human Subjects Research Protections (OHSRP). The OHSRP …
Clinical Research
A study for patients with unexpected genetic results
… is recruiting people who received unexpected genetic test results about their risk for cancer, heart disease, and other … The Genomic Services Research Program (GSRP) is a study of people with "secondary results” from genetic testing. Secondary results are …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… on our website. However, we cannot guarantee the accuracy of information provided on external websites. … organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … Research Institute (NHGRI) or the National Institutes of Health (NIH). NHGRI is not responsible for the contents of …
Event
NHGRI hosts a virtual Q&A with science journalist Angela Saini, author of “Superior: The Return of Race Science” on Thursday, July 23, 2020.
… National Geographic, and Wired. She has won a number of national and international journalism awards. … “Superior” tells the disturbing story of the persistent thread of belief in biological racial differences in the world of … journalist Angela Saini released her book, Superior: The Return of Race Science . Superior tells the disturbing story …
Staff
Rebecca Hong is a scientific program analyst in the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… Rebecca Hong is a scientific program analyst for the Policy and Program Analysis Branch (PPAB) at the National … development, and project management. The focus areas of her work are FDA regulation of genomic technologies and U.S. science policy legislation. … Rebecca Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS …
Staff
Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024.
… Cristina Kapustij, M.S., is chief of the Policy and Program Analysis Branch at the National Human … the branch’s efforts to understand the policy implications of genomics research and technologies, assess policy needs … Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome … NHGRI programmatic policies, and promotes understanding of Human Subjects Research Regulations. Ms. Ghanaim graduated …
Educational Resources
Down syndrome is a genetic disease resulting from a chromosomal abnormality.
… the process that replicates and then divides up the pairs of chromosomes during cell division, resulting in the inheritance of an extra full or partial copy of chromosome 21 from a parent. This extra chromosomal DNA …