Search Results
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… of the research participants (see Genomic Data Sharing Policy below). In addition, NIH issues Certificates of … Database . The Common Rule Published in 1991, the Federal Policy for the Protection of Human Subjects, also known as … genotypes and phenotypes (dbGaP), the NHGRI Genomic Data Science Analysis, Visualization, and Informatics Lab-Space …
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
… Ethical, Legal and Social Implications (ELSI) of Citizen Science … Ethical, Legal and Social Implications of Citizen Science … Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify … Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify …
News Release
John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief NHGRI's Communications and Public Liaison Branch.
… nationwide search, John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief of the … CPLB is part of the Division of Policy, Communications, and Education (DPCE), whose mission … important position wide-ranging work experience, a hard science background and the tremendous energy needed to tell …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… lecture will be given by Joe Palca, Ph.D., a former NPR science correspondent and founder of Scicommers, a collective of science communicators. I encourage you to attend, and please … of the field, NHGRI established the Office of Genomic Data Science (OGDS) a little over two years ago. Directed by …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy emphasizes the importance of good data management … data to explore new frontiers of discovery. Though the policy was published two years ago, many may still be unsure …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … spanning the various research areas (e.g., genomic science, genomic medicine, ELSI research), produces research … Conda CRAN Dockstore PyPi Figshare Github GitLab Open Science Framework Software Heritage(for long-term archiving) …
News Release
The National Academy of Sciences (NAS) has elected Elaine A. Ostrander, Ph.D., National Institutes of Health Distinguished Investigator as a new member.
… NAS considers membership to be a “mark of excellence in science and is considered one of the highest honors that a …
Funding Opportunities
Funding Opportunities for Investigator-Initiated Research in Computational Genomics and Data Science
The Computational Genomics and Data Science Program Announcements (PARs) invite applications for investigator-initiated research efforts fostering innovation in computational genomics, data science, statistics, bioinformatics, and data visualization and exploration.
… The Computational Genomics and Data Science Program Announcements (PARs) invite applications for … fostering innovation in computational genomics, data science, statistics, bioinformatics, and data visualization … NHGRI’s broader efforts in Computational Genomics and Data Science . …
Staff
Dr. Shurjo Sen is a program director in NHGRI's Division of Genome Sciences who manages a portfolio of grants focused upon genomic data sciences, and is particularly interested in transitioning genomics from a centralized data repository model to cloud-based collaborative science.
… manages a portfolio of grants at the intersection of data science and genomics. Apart from a wide-ranging interest in … data environments in genomics to cloud-based collaborative science and creating learning opportunities empowering a … a former advisory board member for the NIH Office of Data Science Strategy’s AIM-AHEAD consortium . Prior to his …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … response, we decided that while we assess the state of the science and any potential risks to research participants, NIH … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health …