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Media Advisory
On January 25, 2023, the National Human Genome Research Institute will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their benefits, limitations and potential for misuse.
… of Health will host a virtual roundtable to discuss social and behavioral genetics and genomics, including their … Social genomics is a field of emerging research that suggests … scientists can use genomic variation to understand complex social behavior. Panelists will discuss genetics and genomics …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… of the research participants (see Genomic Data Sharing Policy below). In addition, NIH issues Certificates of … Database . The Common Rule Published in 1991, the Federal Policy for the Protection of Human Subjects, also known as … for Genomics Research Resource . NIH Genomic Data Sharing Policy The NIH Genomic Data Sharing Policy sets guidelines …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. The DMS Policy emphasizes the importance of good data management … data to explore new frontiers of discovery. Though the policy was published two years ago, many may still be unsure …
Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
… M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research Branch, National Human Genome … Dr. Koehly's research focuses on developing and applying social network methods to the study of complex social systems, such as families and communities. Her …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data management practices would help support NIH's … NIH chief of staff and associate director for science policy, and NHGRI director, Dr. Eric Green. Additionally, …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Structures and Values Genomics and the Physical and Social Environments Genomics and Social Justice Shifting Societal Definitions, Beliefs and … the Rights of Individuals and Groups Law, Regulation and Policy Governing Genomics Industry, Commerce and Economics …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … journals PubMed Central (Note: See the Public Access Policy regarding the NIH requirement to submit final, … of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy . …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary … Carrie D. Wollinetz, Ph.D., Associate Director for Science Policy, National Institutes of Health … way we manage data related to the NIH Genomic Data Sharing Policy. …
News and Events
Discover the secrets hidden in your genome through illustrations, videos, engaging stories, and the latest science that impacts your life.
… The following social media channels are maintained by NHGRI's Office of … On Instagram, LinkedIn, Facebook, X and other social media channels, the National Human Genome Research … The following social media channels are maintained by either staff in the … share any information about people who follow NHGRI on our social media sites. However, we advise that when posting …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society at the National Human Genome Research Institute.
… development grants related to the ethical, legal and social implications of genomic research. Dr. Kaufman serves … Dave Kaufman, return of results policy, ethical legal and social implications, genomic … Dave Kaufman, return of results policy, ethical legal and social implications, genomic information, citizen science …