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Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… doi:10.1038/519410a [5] Hampton, T. (2016). Ethical and Societal Questions Loom Large as Gene Editing Moves Closer to … Policy Issues …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… Policy Issues …
News Release
NHGRI has appointed Chris Gunter, Ph.D., as a senior advisor for genomics engagement. In this role, Dr. Gunter will advise the NHGRI director and the institute on issues and challenges associated with engaging the public about genomics and genomic medicine.
… Gunter will advise the NHGRI director and the institute on issues and challenges associated with engaging the public … people make decisions when they are faced with scientific issues, including genetics and genomics,” said Dr. Gunter. … and adapting to behavior changes associated with genetics issues.” We know that just providing more knowledge doesn’t …
The Genomics Landscape
In the June 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. details the upcoming appointment of acting NHGRI Deputy Director, Vence Bonham Jr., J.D. and what it means for the institute.
… Vence is familiar with NHGRI’s long-standing leadership on issues related to diversity in genomics. Most recently, he …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… Genomic Data Sharing Policy below). In addition, NIH issues Certificates of Confidentiality to enable NIH-funded … Policy Issues …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… genomes as part of a research study raises a number of issues that the informed consent process needs to address, … from Research Risks provides guidance on addressing these issues. Identifiable Populations Identifiable populations, … resources to help their members consider the major issues that come with participating in research. For American …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… Policy Issues …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… or amend rules that apply to both houses; to deal with issues or matters affecting both houses, such as a concurrent … Policy Issues …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… Human Genome Research Institute (NHGRI) to research "legal issues regarding patents" as part of the then center's … that is exclusively licensed. To explore the range of issues implicated in consideration of genetic intellectual … with other organizations, has worked actively on these issues in an effort to maintain a level of access to basic …
The Genomics Landscape
In the December 2024 issue of The Genomics Landscape, NHGRI Director Eric Green highlights the keynote speaker at the institute's annual symposium, Kate Rubins, a biologist and NASA astronaut who was the first person to sequence DNA in space.
… and Capacity Building Efforts Related to Bioethical Issues Building Sustainable Software tools for Open Science …