Search Results
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… It is essential to respect the rights and interests of research participants, given that their contributions, such as samples and health-related information, are critical for the success of most human scientific research. Researchers and research participants should engage in a dialogue to …
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… care (e.g. for diagnostic or therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic medicine … would be used to advance our understanding of biology and disease and to improve health. In the years since the …
News Release
A genetic mutation that triggers bladder cancer in dogs is identical to a mutation that is implicated in multiple human cancers.
… their low blood sugar. Now, an oncogene shared by dogs and humans points to another way that canines may come to our … of Health, Purdue University in West Lafayette, Indiana, and Tufts University in North Grafton, Massachusetts, … for many human cancers, including aggressive skin cancer and cancer of the colon, rectum, ovary and thyroid. Coauthors …
Profile
In an interview, Boyer reflects on her NHGRI career, the history of the NHGRI ELSI Research Program and the exciting future of research at the interface of ethics and genomics.
… From pastor to program director in the Division of Genomics and Society, Joy Boyer concludes her distinguished career at … When people look at it, they see their greatest fears and their greatest desires. There's always been this tension … expectations that ELSI research was going to solve all the social challenges that could potentially be related to …
Social Media
NHGRI launched a Reddit Science "Ask Me Anything" series to share our genomics expertise with the public through online question and answer sessions.
… genomics expertise with the public through online question and answer sessions. Through AMAs, anyone with an internet connection can pick the brains of our scientists and other genomics experts in real time and learn more about advances in genomics research that are …
Event
NSIGHT explores the implications, challenges and opportunities associated with the possible use of genomic sequence information during the newborn period.
… The Newborn Sequencing in Genomic Medicine and Public Health (NSIGHT) program was started in September … Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) and the National Human Genomic … of Health. The purpose of the program is to explore the implications, challenges and opportunities associated with …
Talking Glossary
La interacción genes–ambiente se refiere a interrelación de los genes (y en términos más amplios, de la función del genoma) y el entorno fÃsico y social.
… amplios, de la función del genoma) y el entorno fÃsico y social. … amplios, de la función del genoma) y el entorno fÃsico y social. Esas interacciones influyen en la expresión de … nutrición, la radiación ultravioleta del sol y el contexto social. … amplios, de la función del genoma) y el entorno fÃsico y social. …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… The Genomics and Society Working Group provides advice on short- and long-range planning and priority setting for genomics and society activities at …  The NHGRI Genomics and Society Working Group was established in 2012 as a … Genome Research (NACHGR). The mission of the Genomics and Society Working Group is to provide to the NACHGR advice …
Research at NHGRI
The Metabolic, Cardiovascular and Inflammatory Disease Genomics Branch studies the genomic and social determinants of complex diseases.
… The Metabolic, Cardiovascular and Inflammatory Disease Genomics Branch (MCIDGB) studies the genomic and social determinants of complex diseases. … that are disproportionately distributed by ethnicity and geography (e.g., diabetes, hypertension, heart and kidney …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… Review Board (IRB) training program for American Indians and Alaska Natives at the National Institutes of Health (NIH). IRBs are committees, at NIH and at other research institutions, which ensure the welfare … To qualify for NIH grants, all researchers must understand and comply with applicable IRB requirements. …