Search Results
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… NHGRI's Table of State Statutes Related to Genomics provides the total number of states that have enacted legislation on the topics in the database, together with a description of each topic. … is reviewed and updated monthly. Searchable topics in the database include employment and insurance …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, prevent, detect and better … to your family members about your choice to participate in research. Also ask the researcher what information might …
The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… to bring to your attention a spectacular recent feature in Science that describes the remarkable work of NHGRI’s … diverse backgrounds will benefit equitably from advances in human genomics. Speakers: Robert Winn, M.D., Virginia Commonwealth … and led major basic science and clinical research projects in human genomics. He is a leader in the development of …
Policy Issues
Patients with genetic disorders and members of the public have diverse about germline genome editing.
… with genetic disorders and members of the public, both in the United States and around the world, have diverse views … currently have treatment options. Others, such as those in the deaf community, do not consider their condition to be … genetic conditions would be less likely to be accepted in society. Many communities generally question the idea that …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… from home. If you are seeking some virtual connections to genomics, I would like to offer some “remote learning” … Director) and I answered questions about bioethics and genomics research on Twitter as part of #AskDrGenome . … 30th anniversary of the launch of the Human Genome Project in October 2020. Check out the latest oral histories by …
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the … fellow interested in the study of the intersection of genomics, social determinants of health and health inequities … genetic therapies into health care, as well as societal issues of genomics, race and human genetic variation. …
The Genomics Landscape
In the June 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. details the upcoming appointment of acting NHGRI Deputy Director, Vence Bonham Jr., J.D. and what it means for the institute.
… is the 5th session of the “ Bold predictions for human genomics by 2030 ” seminar series, which takes place on … fairs.” The second event is the 2021 Healthcare Provider Genomics Education Week , which takes place June 7-11 and … include webinars and Twitter chats (see additional details in the story below). All the best, …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… As February begins, many of us at NHGRI are working hard in preparation for the upcoming 101st meeting of the … the career of Bettie Graham, Ph.D., who we wish the best in retirement. To learn more about her remarkable career and … about the individuals who provided those samples. In this article, University of Colorado researchers describe …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society at the National Human Genome Research Institute.
… the National Human Genome Research Institute (NHGRI) in May of 2014, after working as an NHGRI ELSI grantee for … of research and career development grants related to the ethical, legal and social implications of genomic research. … He also focuses on big data and stakeholder engagement issues. Visit the ELSI Research Areas webpage for more …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… Genomics research is shaping the future of medicine. For … of the population. It is also necessary to understand ethical, legal and social issues including utilization of genomic information, access … be informed about genomics research and to understand the ethical, legal and social implications resulting from …