Search Results
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… Review Boards, and integrating information on GINA into informed consent forms. To comply with GINA, informed consent forms should include information on any …
For Health Professionals
ISCC-PEG working groups that are no longer active. Information is kept for historical purposes.
Your Genome
Information about the relationship between genomics and health for patients, families and health professionals.
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… limitations to promote consistent implementation of the consent group categories. Development of fillable …
Educational Resources
A family history is a record of medical information about an individual and their biological family.
News and Events
A collection of institute resources, background information, and points of contact for members of the press.
Talking Glossary
Precision medicine (generally considered analogous to personalized medicine or individualized medicine) is an innovative approach that uses information about an individual’s genomic, environmental and lifestyle information to guide decisions related to their medical management.
Research Funding
NSIGHT explores the implications, challenges and opportunities with the use of genomic sequence information in the newborn period.
Health
Guidance on collecting your family health history information before visiting the doctor.
Educational Resources
Deoxyribonucleic acid (abbreviated DNA) is the molecule that carries genetic information for the development and functioning of an organism.