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The Genomics Landscape
In the January 2025 issue of The Genomics Landscape, NHGRI Director Eric Green announces the appointment of Erin Ramos as the new director of the Division of Genome Sciences (DGSci).
… The new year is getting off to a typical genomics-energized start for NHGRI. We just updated our … architecture , long-read DNA sequencing , and pangenome . In addition to definitions, this resource includes … from experts at NHGRI. Look out for more terms to come in 2025! By the simple coincidence of scheduling, I am in the …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… Advisory Council for Human Genome Research on complex issues at the interface between genomics and data science. … leaders about relevant trans-National Institutes of Health issues related to data science, for which NHGRI is frequently … challenges (from data management to data usage, including policy-related elements) as they relate to all areas of …
Research Funding
The Division of Genomics and Society focuses on the societal issues that need to be studied and addressed as genomics advances.
… The Division of Genomics and Society is responsible for exploring societal issues related to genomics, incorporating and extending the … research program and integrating NHGRI-wide activities in these areas. … will also collaborate closely with the Division of Policy, Communications, and Education to ensure that the …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented. … The earliest genetic patents were issued in 1982, following the U.S. Supreme Court case of Diamond vs. … databases within 24 hours of being generated. This policy of open access to the genome has been a core ethos of …
Staff
Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024.
… Cristina Kapustij, M.S., is chief of the Policy and Program Analysis Branch at the National Human … needs for the field, and develop policy positions on issues arising from the translation of genomic research discoveries to uses within the public domain. In addition to advising Institute leadership on a broad range …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office … and grantee partners on data sharing and privacy policy issues. For the last three years, she has advised the NHGRI … matters. Within NHGRI, she holds a joint appointment in the Policy and Program Analysis Branch (PPAB), where she …
News Release
The Genomics and Society: Expanding the ELSI Universe conference focused on issues arising from the ethical, legal and social implications of genomic research.
… testing of women with family histories of breast cancer, genomics is rapidly becoming a fixture in our lives. Genomics and Society: Expanding the ELSI … Universe, a three-day conference on the vast number of issues that spring from the ethical, legal and social …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… late last month. This budget provides $48.6 billion in base funding across NIH, which is an increase of … budget for this fiscal year is essentially the same as in 2023. Of course, now our attention will quickly turn to Fiscal Year 2025, which begins in less than six months! All the best, …
The Genomics Landscape
In the January 2024 issue of The Genomics Landscape, NHGRI Director Eric Green announces the appointment of Dr. Adam Phillippy as the founding director of the Center for Genomics and Data Science Research (CGDSR).
… yours — and here’s to a 2024 featuring many breakthrough genomics advances! Last year ended with exciting news from … of two events that I had the pleasure of participating in last month. Brendan Lee, MD., Ph.D. , and I recorded an … website and other podcast platforms. And as mentioned in last month’s The Genomics Landscape , the National …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… What types of resources should be addressed in a Resource Sharing Plan? Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … produces research tools that need to be addressed in the Resource Sharing Plan. Resources that should be …