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Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… Human Genome Research Institute (NHGRI) to research "legal issues regarding patents" as part of the then center's … that is exclusively licensed. To explore the range of issues implicated in consideration of genetic intellectual … with other organizations, has worked actively on these issues in an effort to maintain a level of access to basic …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
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Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… and incidental findings (IFs) from genomic research. These issues are not new or unique to genomics, but advances in … the Presidential Commission for the Study of Bioethical Issues released a report titled "Anticipate and Communicate: … Policy Issues …
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… each willing to foster sustained attention to these issues in their research institutions and training programs; …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
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Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… held a conference to talk about these and similar ethical issues at the International Summit on Human Gene Editing . … Policy Issues …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
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Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… FAQs about Clinical Studies Legal, Ethical, and Safety Issues … Policy Issues …
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
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Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… given that local IRBs will have more insight into ethical issues that require consideration (.114). Enforced compliance … Policy Issues …