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The Genomics Landscape
In the May 5, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., pays tribute to one of NHGRI’s founding staff members and current leaders, Bettie Graham, Ph.D., as she reached a truly remarkable milestone: 50 years of service in the federal government.
… Responsible Management and Sharing of American Indian/Alaska Native Participant Data provides information about helpful …
File
… Roundtable on Inclusion and Engagement of Underrepresented Populations in Genomics National Human Genome Research … A&T State University Bert Boyer, Ph.D. — Center for Alaska Native Health Research at University of Alaska Fairbanks … Roundtable on Inclusion and Engagement of Underrepresented Populations in Genomic Research.pdf …
For Patients and Families
The partnership engages communities on genomics, informs and shares perspectives, and impacts the focus of research.
… liaisons and health advocates representing diverse populations to engage communities on genomics, inform and … liaisons and health advocates representing diverse populations to engage communities around genomic science, to … Raleigh Erik Stegman, J.D., Executive Director, Center for Native American Youth, Washington, D.C. Lorelei Walker, …
Fact Sheet
Participation in genomics research is essential for improving the health of everyone.
… occur at different frequencies across different human populations; some are rare and unique to specific families, while others are common and found across populations.  Genomes from distinct populations differ due to multiple factors, including who … used for research are from European ancestry, making many populations from across the globe inadequately represented in …
The Genomics Landscape
In the July 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the 10th anniversary of the Undiagnosed Diseases Program.
… 8th Annual Nuka System of Care Conference  in Anchorage, Alaska. The Southcentral Foundation is an Alaska Native-owned, nonprofit healthcare organization serving …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… all Data Types Management and Sharing of American Indian/Alaska Native Participant Data NIH Notice on Protecting Privacy …
The Genomics Landscape
In the August 2023 edition of The Genomics Landscape, NHGRI Director Eric Green introduces incoming NHGRI DEO Director, Jennifer Troyer.
… . Additionally, she took part in a workshop in 2018 led by Alaska Native people that discussed socially responsible genomics …
Research Funding
The centers study in innovative ways to address important ethical, legal, and social issues related to advances in genomics.
… medical care could potentially impact American Indian and Alaska Native communities and health care systems. The university … to improve the mechanisms for obtaining input from diverse populations to help to identify and assess policy options for …
News Release
NHGRI is awarding Genomic Innovator Awards to nine institutions to support the research of 12 early career scientists in the field of genomics. The awards will total up to $27 million over five years.
… medicine, and genomic studies in historically marginalized populations. "The awards reflect a cadre of emerging genomics … for applying personalized medicine in American Indian and Alaska Native (AIAN) culture.  Le Cong, Ph.D. Stanford University …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… provides guidance on addressing these issues. Identifiable Populations Identifiable populations, which include specific … with participating in research. For American Indian and Alaska Native communities, for example, the National Congress of …