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Research at NHGRI
The Center for Precision Health Research, formerly Medical Genomics and Metabolic Genetics Branch, studies how health and disease are related to genetic, genomic and metabolic variation.
… The investigators in the Center for Precision Health Research (CPHR) develop and … The Center for Precision Health Research (CPHR) (formerly the Medical Genomics and Metabolic Genetics Branch) was established in … healthcare and research datasets to identify novel clinical and genetic insights into disease. CPHR research …
Research Funding
The centers study in innovative ways to address important ethical, legal, and social issues related to advances in genomics.
… to ongoing genetic, genomic and ELSI research efforts. A Center should: Develop and operate with a highly effective … from different disciplines, such as genomic sciences, clinical research, clinical and health policy, ethics, law, … to support other related research). Add value beyond the genomics and ELSI research studies that are already ongoing …
Research Funding
​CSER is rapidly advancing the knowledge necessary to develop best practices for implementating genomic sequence data into clinical care. ​
… becomes routine. Evidence regarding the most promising clinical applications and the specific diseases or individual … Incorporation of comprehensive genomic sequence data into clinical care will require changes to institutional policies, … added three more clinical sites and one Coordinating Center, and incorporated the nine projects formerly …
Clinical Research
A Longitudinal Natural History Study of Children with Mitochondrial Disease (at the NIH Clinical Center).
… to define the relationship between infection, immunity and clinical decline in individuals with mitochondrial disease. … with mitochondrial disease can lead to worsening clinical symptoms, particularly neurologic symptoms.    … is to understand the relationship between infection and clinical decline in patients with mitochondrial disease. …
Event
NHGRI holds a pre-application webinar for potential applicants on the Broadening Opportunities for Computational Genomics and Data Science Education NOFO on September 1, 2023 at 2:00 pm ET.
… a pre-application webinar about the Notice of Funding Opportunity (NOFO) RFA-HG-23-002 , for potential applicants … Webinar: Broadening Opportunities for Computational Genomics and Data Science Education NOFO … on the Broadening Opportunities for Computational Genomics and Data Science Education NOFO on September 1, 2023 …
News Release
NHGRI has appointed Neil Hanchard, M.D., Ph.D., as a clinical investigator within the Medical Genomics and Metabolic Genetics Branch (MGMGB) in the Division of Intramural Research. Dr. Hanchard will head the Childhood Complex Disease Genomics Section within the MGMGB.
… Dr. Hanchard will lead the new Childhood Complex Disease Genomics Section. … (NHGRI) has appointed Neil Hanchard, M.D., Ph.D., as a clinical investigator within the Medical Genomics and Metabolic Genetics Branch (MGMGB) in the NHGRI … Dr. Neil Hanchard joins NHGRI as a clinical investigator …
News Release
A two-day international gathering on genomic medicine from more than 25 countries recommended ways to improve the use of genomics in medicine.
… meetings, was to recommend ways to improve the use of genomics in medicine. "We're united globally by a passion to … for Genome Sciences and Policy and executive director, Center for Personalized and Precision Medicine at Duke … of challenges, including proving that using genomics in clinical care is cost effective, and understanding which - …
For Patients and Families
The Genetic and Rare Diseases Information Center helps people find useful information about genetic and rare diseases.
… The Genetic and Rare Diseases Information Center helps people find useful information about genetic and … The Genetic and Rare Diseases Information Center (GARD)  was created in 2002 by the National Human … contacted GARD, as have people who are taking part in a clinical study. Community leaders looking to help people find …
OGDS
NHGRI held a second pre-application webinar for potential applicants on the Broadening Opportunities for Computational Genomics and Data Science Education NOFO on September 27, 2023 at 2:00 pm ET.
… second pre-application webinar about the Notice of Funding Opportunity (NOFO) RFA-HG-23-002 , for potential applicants … 2nd Webinar: Broadening Opportunities for Computational Genomics and Data Science Education NOFO … on the Broadening Opportunities for Computational Genomics and Data Science Education NOFO on September 27, …
Staff
Dr. Clesson Turner is the director of the Reverse Phenotyping Core and a staff clinician in the Center for Precision Health Research of the National Human Genome Research Institute.
… the National Capital Consortium in 2002 and a residency in Clinical Genetics and Clinical Molecular Genetics at NHGRI in 2009. Dr. Turner … chief of genetics at Walter Reed National Military Medical Center and as the chief of cancer genetics at the Murtha … investigators to facilitate genomic ascertainment-based clinical research. The core aims to develop a new paradigm of …