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The Genomics Landscape
In 2022, The Genomics Landscape spotlighted genomic data sharing each month in a series of entries. This page contains a collection of each of those entries.
… central to the field of genomics. Both human and non-human genomic data have been widely shared through public data … the power of scientific investigation by allowing genomic data to be combined across studies, and accelerates … number of Data Access Requests (DARs) for secondary use of genomic data (see figure)?   …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… Technological advances have made genetic and genomic tools faster, cheaper and more compatible with …  or the practice of IGG. The Department of Justice Interim Policy on investigative genetic genealogy went into effect in November 2019. The policy, which applies to all law enforcement agencies (i.e., …
15 Ways Genomics Influences Our World
Advances in genomics are helping you access information about your genome from your home.
… led to an explosion in at-home, or "direct to consumer" genomic testing. You can even seek genomic information without involving a healthcare provider … on the radio. The global "direct-to-consumer" (or DTC) genomic testing market was valued at $117 million in 2017, …
15 Ways Genomics Influences Our World
Genomics is altering a genome with unparalleled efficiency and precision.
… introduce mutations at the wrong sites rather than the genomic location being targeted. Many scientists are working … to couple the malaria-battling mutations with additional genomic changes designed to ensure a rapid spread throughout … controversial. For the first time , we can introduce genomic changes by genome editing and sweep them through …
The Genomics Landscape
In the April 2019 edition of The Genomics Landscape, NHGRI Director Eric Green previews the redesigned genome.gov website and its new features.
… inspirational piece illustrates yet another triumph of genomic medicine and offers hope for similar new treatments … role in strengthening research partnerships, informing policy, and educating society about genomic advances. A key element among these efforts is …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… ethical, legal and social issues including utilization of genomic information, access to genomic services, and how genomics is perceived by different … (CSER) program  is an effort of NHGRI's Division of Genomic Medicine and Division of Genomics and Society, in …
Fact Sheet
Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.
… or data are de-identified); however, there may be other policy or ethical reasons for conveying that such research … samples for certain purposes. In accordance with the NIH Genomic Data Sharing (GDS) policy , researchers who intend to use human-derived … Samples, genomic data and health information collected during routine …
15 Ways Genomics Influences Our World
Genomics is transforming how we study, diagnose and treat cancer.
… therapy. Such trials are aided by patients who share their genomic data with researchers or even openly with other … cancer than other people. As we learn more about the genomic changes predisposing a person to cancer, we have been … a number of companies who can help if you'd like to have genomic testing for hereditary causes of breast cancer. …
Genomics 101
Find out how the rapidly emerging field of genomics is transforming our understanding of human health and enabling advances that benefit all of humankind.
… and partnerships help spark scientific curiosity, improve genomic literacy, and foster engagement among learners in … in English and Spanish to help you dive in and learn key genomic concepts. Search for any genomic term to learn more.  …
Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… to the ethical, legal and social (ELSI) implications of genomic research. Dr. Lockhart also coordinates the Genomics … (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is … on ELSI Research Program grants and initiatives related to Genomic Research Design and Implementation, which identifies, …