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Talking Glossary
Genomic medicine is a medical discipline that involves using a person’s genomic information as part of their clinical care.
Research Funding
IGNITE enhances genomic medicine by supporting the development of methods for incorporating genomic information into clinical care.
Health
Information about genomics competencies, patient care, and related partnership and outreach activities at NHGRI.
About NHGRI
Search for names, email addresses, phone numbers and other contact information of NHGRI staff.
News Release
The finding marks a new effort in conserving an ancient dog breed, with potential to inform human vocalization processes.
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… researchers believe that at a minimum and after an informed consent process, incidental findings that are medically … IFs and the possible benefits and risks of pursuing IFs. Informed consent can then be obtained if the patient wishes to learn …
Educational Resources
Gene expression is the process by which the information encoded in a gene is used to direct the assembly of a protein molecule.
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society​ at the National Human Genome Research Institute.
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… subject selection methods Copies of blank, dated, stamped consent forms and IRB approvals Survey codebooks including … I’m thinking through consent for data sharing of qualitative data and am … the following:   “Consent” refers to legally effective informed consent as required by the Common Rule (45 CFR 46, …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.