Search Results
15 Ways Genomics Influences Our World
Advances in genomics are helping you access information about your genome from your home.
… ethical questions. Since children may not be able to consent to such a test and/or they might be unable to fully …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… available only for research purposes consistent with the consent provided by participants in the original study. Under … are using the data and also encourages researchers to get consent from participants for future unspecified use of their … GDS policy is the expectation that researchers obtain the informed consent of study participants for the potential …
News Release
The Clinical Sequencing Exploratory Research Consortium has offered an ethical framework to guide pediatricians in pursuing clinical sequencing studies.
… risk for disease in patients who are too young to give informed consent. … and Society. By definition, young children cannot give informed consent for any medical procedure; very young children simply … pediatric genome sequencing, Laurence McCulllough Ph.D., informed consent …
News Release
On March 16, Rep. Louise M. Slaughter (D-N.Y.), lead author of the Genetic Information Nondiscrimination Act of 2008 (GINA), passed away at the age of 88.
MINC
MINC resources for educators
… Resource Title File Type Educator Letter PDF Educators - …
MINC
MINC resources for administrators.
… Resource Title File Type Administrator Business Case MS Word …
Educational Resources
A family history is a record of medical information about an individual and their biological family.
Educational Resources
Deoxyribonucleic acid (abbreviated DNA) is the molecule that carries genetic information for the development and functioning of an organism.
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… aspects of genetics and genomics. The platform facilitates resource sharing and community building among ELSI scholars, … utility of generated data while maintaining privacy and consent. In an effort to improve data sharing in biomedical …
Educational Resources
Gene expression is the process by which the information encoded in a gene is used to direct the assembly of a protein molecule.