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Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office … and grantee partners on data sharing and privacy policy issues. For the last three years, she has advised the NHGRI … matters. Within NHGRI, she holds a joint appointment in the Policy and Program Analysis Branch (PPAB), where she …
News Release
The Genomics and Society: Expanding the ELSI Universe conference focused on issues arising from the ethical, legal and social implications of genomic research.
… testing of women with family histories of breast cancer, genomics is rapidly becoming a fixture in our lives. Genomics and Society: Expanding the ELSI … Universe, a three-day conference on the vast number of issues that spring from the ethical, legal and social …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… late last month. This budget provides $48.6 billion in base funding across NIH, which is an increase of … budget for this fiscal year is essentially the same as in 2023. Of course, now our attention will quickly turn to Fiscal Year 2025, which begins in less than six months! All the best, …
The Genomics Landscape
In the January 2024 issue of The Genomics Landscape, NHGRI Director Eric Green announces the appointment of Dr. Adam Phillippy as the founding director of the Center for Genomics and Data Science Research (CGDSR).
… yours — and here’s to a 2024 featuring many breakthrough genomics advances! Last year ended with exciting news from … of two events that I had the pleasure of participating in last month. Brendan Lee, MD., Ph.D. , and I recorded an … website and other podcast platforms. And as mentioned in last month’s The Genomics Landscape , the National …
Policies and Guidance
This page provides an overview of Resource Sharing Plans, a required document in most NIH funding applications. Most applicants for NIH funding must provide a Resource Sharing Plan (RSP) documenting plans for sharing resources that result from their federally funded work. NIH Policies that govern the sharing of resources include the NIH Model Organism Sharing Policy and the NIH Research Tools Policy.
… What types of resources should be addressed in a Resource Sharing Plan? Please review the NIH webpage on the Research Tools Policy for the NIH definition of “research tools,” principles … produces research tools that need to be addressed in the Resource Sharing Plan. Resources that should be …
The Genomics Landscape
In the August 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., spotlights the NHGRI Extramural Research Program and how it takes a dynamic approach to it's research portfolio to help foster groundbreaking advances in genomics.
… breakthroughs for diseases by making “pivotal investments in breakthrough technologies and broadly applicable … NIH and the White House Office of Science and Technology Policy are organizing a series of virtual listening sessions … on Wednesday, August 11, will be geared toward research on genomics, biomedical engineering and imaging, and health …
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… is here, and with it comes many opportunities to engage in areas related to genomics and the biomedical research enterprise. Recently, … for talented, early-career scientists interested in pursuing careers at NIH’s Intramural Research Program … responsible data sharing, and rigor and reproducibility in genomics research — the genomics enterprise has a …
Policies and Guidance
NHGRI links to external websites to supplement the information found on our website.
… Our website has links to many other federal agencies, and in a few cases we link to private organizations. You are subject to external site's privacy policy when you leave our site. We proudly comply with 508 … on other federal or private Web sites. Reference in this website to any specific commercial products, process, …
Research Funding
The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program Abstracts and Activities Database organizes abstracts for all ELSI-related activities
… projects that conduct research and education on ELSI issues. ELSI also supports other program activities such as workshops, research consortia and policy conferences related to these issues. … Ethical Issues In Genomics, Legal Issues In Genomics, Social Issues …
The Genomics Landscape
In the September 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details how social media provides NHGRI staff with a space to talk about their work, make genomics topics easy to understand, and show how genomics can positively affect people.
… array of updates about the many happenings at NHGRI and in genomics, I would like to draw your attention to efforts of … and data interpretation. This RFI was released in parallel with a companion RFI focused on reference … to the 2020 NHGRI Strategic Vision , funding opportunities in genomics, the importance of genomic literacy, and the need …