Search Results
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
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… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office … (NHGRI). She spearheads NHGRI’s scientific data sharing policy development, oversight, and implementation. Ms. … NIH and grantee partners on data sharing and privacy policy issues. For the last three years, she has advised the …
Staff
Dr. Lawrence Brody is a senior investigator in NHGRI's Social and Behavioral Research Branch and director of NHGRI's Division of Genomics and Society.
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… and disease prevention. With investigators in NHGRI's Social and Behavioral Research Branch, he initiated and … metabolic pathways, birth defects, ethical legal and social issues, BRCA1, BRCA2, breast cancer … metabolic pathways, birth defects, ethical legal and social issues, BRCA1, BRCA2, breast cancer …
News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… in numerous datasets and analyses used to make health policy decisions. While issues of inclusion persist, Alaska … disparities, an associate investigator in the NHGRI's Social and Behavioral Research Branch and co-author on the …
Research Training
Competitive scholarships for students from disadvantaged backgrounds to support careers in biomedical, behavioral and social science health-related research.
… are committed to careers in biomedical, behavioral, and social science health-related research. … to support careers in biomedical, behavioral and social science health-related research. … Biomedical Research Careers, Behavioral Research Careers, Social Science Health-related Research Careers, Research …
Talking Glossary
La raza es una construcción social que se utiliza para clasificar a las personas.
… La raza es una construcción social que se utiliza para clasificar a las personas. … La raza es una construcción social que se utiliza para clasificar a las personas. La raza … La raza es una construcción social que se utiliza para clasificar a las personas. …
News Release
NHGRI researchers seek help from people with Sickle Cell Disease to find the factors - environmental, social and genetic - that impact the severity of symptoms.
… affected by SCD to find the factors - environmental, social and genetic - that impact the severity of symptoms. … Bonham , Jr., J.D., an associate investigator with NHGRI's Social and Behavioral Research Branch , Division of … humans), the genome (all the genes in a person), and the social and environmental factors that may impact their …
Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… development grants related to the ethical, legal and social (ELSI) implications of genomic research. Dr. Lockhart … (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is … for the Advancement of Science (AAAS) Science and Policy Fellow and as a Christine Mirzayan Science and …
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
… Trans-NIH Workshop to Explore the Ethical, Legal and Social Implications (ELSI) of Citizen Science … Ethical, Legal and Social Implications of Citizen Science …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can provide insights and … funded by or carried out at NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or … for example, the National Congress of American Indians Policy Research Center , in conjunction with NHGRI, developed …
Social Media
NHGRI launched a Reddit Science "Ask Me Anything" series to share our genomics expertise with the public through online question and answer sessions.
… Social Media …