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Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… development grants related to the ethical, legal and social (ELSI) implications of genomic research. Dr. Lockhart … (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is … for the Advancement of Science (AAAS) Science and Policy Fellow and as a Christine Mirzayan Science and …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can provide insights and … funded by or carried out at NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or … for example, the  National Congress of American Indians Policy Research Center , in conjunction with NHGRI, developed …
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
… Trans-NIH Workshop to Explore the Ethical, Legal and Social Implications (ELSI) of Citizen Science … Ethical, Legal and Social Implications of Citizen Science …
Social Media
NHGRI launched a Reddit Science "Ask Me Anything" series to share our genomics expertise with the public through online question and answer sessions.
… Social Media …
Talking Glossary
La interacción genes–ambiente se refiere a interrelación de los genes (y en términos más amplios, de la función del genoma) y el entorno físico y social.
… amplios, de la función del genoma) y el entorno físico y social. … amplios, de la función del genoma) y el entorno físico y social. Esas interacciones influyen en la expresión de … nutrición, la radiación ultravioleta del sol y el contexto social. … amplios, de la función del genoma) y el entorno físico y social. …
Fact Sheet
Several regulations and policies stipulate the information that must be given to research participants prior to their enrolling in a study.
… or data are de-identified); however, there may be other policy or ethical reasons for conveying that such research … In accordance with the NIH Genomic Data Sharing (GDS) policy , researchers who intend to use human-derived …
MINC
Use the resources to help you design an education program or policy for your setting.
… the resources to help you design an education program or policy for your setting.   Resource Title Type Cost Action … Module Pdf Free Fox Chase PA: Risk Assessment Program Policy Free Genetics Home Reference Online Free Genetics of … the resources to help you design an education program or policy for your setting. …
Research Funding
The centers study in innovative ways to address important ethical, legal, and social issues related to advances in genomics.
… The NHGRI Ethical, Legal and Social Implications (ELSI) Research Program has funded … genomic sciences, clinical research, clinical and health policy, ethics, law, the humanities, economics, political science, anthropology and other basic social sciences. Be highly innovative and develop new …
Research at NHGRI
The Metabolic, Cardiovascular and Inflammatory Disease Genomics Branch studies the genomic and social determinants of complex diseases.
… Disease Genomics Branch (MCIDGB) studies the genomic and social determinants of complex diseases. … behavior, biosurveillance, and molecular, genomic and social determinants; their effects on gene expression; as … addition, they conduct research related to the effects of social determinants on cardiovascular disease morbidity and …
Genetic Disorders
Autism is characterized by impaired social interactions, problems with verbal and nonverbal communication and repetitive behaviors.
… group of developmental disorders characterized by impaired social interactions, problems with verbal and nonverbal … group of developmental disorders characterized by impaired social interactions, problems with verbal and nonverbal … any individual and is not based on ethnic, racial or social background. The incidence of autism is the same all …