Search Results
The Informed Consent Resource
Examples consent forms used by genomics research projects.
News Release
Researchers are trying to understand a process whose rules are constantly being written and rewritten by cancer's rogue cells: who will more likely relapse.
For Patients and Families
The partnership engages communities on genomics, informs and shares perspectives, and impacts the focus of research.
… and guidance on the development of programs, tools, and information for various communities. Providing community …
eMERGE
Important information about RFAs, upcoming dates, frequently asked questions and helpful links.
… Important information about RFAs, upcoming dates, frequently asked … What information can be used to formulate a genomic risk … present in non-European populations or describing how the information will be used in populations where the variants … patient. The goal is to capture the impact of genomic risk information on patients’ outcomes, which must be done …
Staff
Ellen Rolfes is the director of the Division of Management at and executive officer of the National Human Genome Research Institute.
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… Institute's administrative functions, including budget, information technology and human capital management. In doing … Ellen Rolfes, NHGRI budget, jobs at NHGRI, human resources, information technology … Ellen Rolfes, NHGRI budget, jobs at NHGRI, human resources, information technology …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… the relevant template below or send the basic study information needed for study registration to the NHGRI GPA ( nhgrigpa@mail.nih.gov ):  NHGRI’s Basic Study Information Template    Template for Requesting an … data sharing policies. For general NIH data sharing policy information, please visit NIH's Scientific Data Sharing …
News Release
Three research teams funded by NIH gather data at the most basic molecular levels about the biological processes that make up the human microbiome.
… We did not want to go back and wish we had collected more information from these human microbiome model studies." The … containing multi-omic data -that is, all the molecular information that is possible to gather using current …
For Health Professionals
ISCC-PEG working groups that are no longer active. Information is kept for historical purposes.
… following ISCC-PEG working groups are no longer active. Information about these groups are retained solely for … ISCC-PEG working groups that are no longer active. Information is kept for historical purposes. … ISCC-PEG working groups that are no longer active. Information is kept for historical purposes. …
Your Genome
Information about the relationship between genomics and health for patients, families and health professionals.
… and your family. Our resources will help you find detailed information about genetic disorders, the new science of … providing health professionals with reliable, up-to-date information on the rapidly expanding field of genomics.  … Information about the relationship between genomics and …
Educational Resources
A family history is a record of medical information about an individual and their biological family.
… A family history is a record of medical information about an individual and their biological family. … A family history is a record of medical information about an individual and their biological family. …