Search Results
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
Staff
Cristina Kapustij was the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute until June 2024.
​
… Elena Ghanaim, NIH Genomic Data Sharing (GDS) Policy, Informed Consent, health privacy regulations, human research …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
​
… Elena Ghanaim, NIH Genomic Data Sharing (GDS) Policy, Informed Consent, health privacy regulations, human research …
Educational Resources
Pharmacogenomics is a branch of pharmacology concerned with using DNA and amino acid sequence data to inform drug development and testing.
GenomeEd
The GenomeEd Review Committee reviews all newly submitted resources to determine if the resource is current, of excellent quality, accurate, created by experts in the field, and focused on genomics education.
… reviews all newly submitted resources to determine if the resource is current, of excellent quality, accurate, created … reviews all newly submitted resources to determine if the resource is current, of excellent quality, accurate, created … reviews all newly submitted resources to determine if the resource is current, of excellent quality, accurate, created …
Educational Resources
Genetic discrimination is prejudice directed against people who have or may have a genetic disease.
15 Ways Genomics Influences Our World
Genomics is fostering an appreciation for what our DNA means for our health, identities and culture.
… major areas of study in ELSI research  are questions about consent and privacy. For example, what do you need to know … your DNA before you agree to participate? That's called " informed consent ." As new areas of genomics have developed in recent …
MINC
There are many resources to help you learn more about integrating genomics into practice.
Staff
Rosann Wise is a program analyst in the Education and Community Involvement Branch at the National Human Genome Research Institute.
​
The Genomics Landscape
In the August 4, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the establishment of the Global Biodata Coalition (GBC), which aims to move towards more internationally coordinated, sustainable, and streamlined mechanisms that support the biodata ecosystem.
… that are now working to understand the global biodata resource infrastructure and to move towards more … over the last few decades. The depth and breadth of this resource makes it unique within NIH and the larger scientific … a New Competency: Genomics (MINC) Toolkit is the only resource of its kind that targets the largest healthcare …