Search Results
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… from diverse backgrounds to help implement computational genomics and data science materials at their schools! October … Bettie J. Graham Leadership Award for Enhancing the Genomics Workforce. Congratulations to Drs. Shilpa Garg, … The Office of Genomic Data Science (OGDS) was established in 2021 to: Develop, promote, support and coordinate genomic …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… available through newly developed genetic tests. In order for patients to have full access to the benefits of … and whether the test is scientifically valid. This is in part because procedures are billed according to a … of genetic testing. There are several reports created by policy and scientific experts seeking to advise Federal …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database. … for introducing proposed laws or proposals to repeal laws in one house of a legislature. Bills are generally designated … or amend rules that apply to both houses; to deal with issues or matters affecting both houses, such as a concurrent …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… Data sharing has been a central tenet of the field of genomics since the Human Genome Project. While many recognize … and risks while crafting genomic data sharing policies. In this session, the four panelists will describe evolving … Data sharing has been a central tenet of the field of genomics since the Human Genome Project. …
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… independent NIH research support during this transition in order to help awardees to launch competitive, independent … Lessons, the Domestic Legal Landscape, and Options for U.S Policy Anya Prince 2015 Summary Statement Full Application … and Social Implications of Translational Psychiatric Genomics Research Gábriel Lazaro-Muñoz 2014 Summary Statement …
Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… sequencing (NGS) and other genomic tests to be in vitro diagnostic devices (IVDs), a type of medical device. … devices (e.g., heart valve or insulin pump). As a leader in genomic research, NHGRI has created the IDE Greenhouse as … to help understand the regulation in the context of genomics. Genomic studies that were either successfully …
Research Funding
The ELSI Publications and Products Database organizes publications for ELSI projects and activities by the last name of the principle investigator.
… Since its creation in 1990, the Ethical, Legal and Social Implications (ELSI) … activities-through grants and contracts. This has resulted in many peer reviewed journal articles, books, newsletters, … educational materials. Many of these products are included in this database (updates are still in progress). However, …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… continue to be optimistic that we will find ourselves in very different COVID-19 circumstances by next Thanksgiving. I was remiss in making you aware of an important National Institutes of … highlights the “Guiding Principles and Values for Human Genomics” described in the recently published 2020 NHGRI …
The Genomics Landscape
In the October 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes James Thomas as the new director for NIH Intramural Sequencing Center (NISC).
… address to the entering class at Spelman College in Atlanta, Georgia. Since most of the students in attendance … are not majoring in the sciences, I focused on how genomics is increasingly relevant in our everyday lives. It … an excellent opportunity to gain experience in genomics policy, education, communications, or program management. …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and … from human sources, such as specimens and cell lines. The policy applies to NHGRI-funded research that will generate …