Search Results
Careers & Training
The Genomics and Public Service Fellowship Program continues post-graduate fellowship programs in public policy and education and engagement and adds two new programs – a post-graduate communications fellowship and a post-baccalaureate fellowship.
… Service Fellowship Program recognizes the importance of diverse career paths to inform and advance genomics and … program provides training and career development in public policy, education and engagement, science communications and … more information about the fellowships, including notice of application windows. …
News Release
NHGRI has appointed Dr. Jennifer Troyer as the incoming director as the incoming director of the Division of Extramural Operations (DEO) within NHGRI’s Extramural Research Program (ERP). She will provide leadership in coordinating the institute’s extramural research grants, operations and policies.
… The National Human Genome Research Institute (NHGRI), part of NIH, has appointed Dr. Jennifer Troyer as the incoming director of the Division of Extramural Operations (DEO) within NHGRI’s Extramural … NHGRI appoints Dr. Jennifer Troyer as incoming director of the Division of Extramural Operations …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… A constant tension that spans all areas of biomedical research and clinical practice is the question of how experts can act in the best interest of patients and … is best for those individuals. On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion …
Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… Data sharing is an important aspect of the research endeavor that ensures maximal use of participants’ data for scientific discovery, rigor and … NHGRI uses the NIH definition of metadata provided in the Final NIH Policy for Data Management and Sharing : Metadata are “data …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Office of Science Policy … with access to genomic data. The National Institutes of Health (NIH) Genomic Data Sharing Policy establishes a system to promote data sharing, while … genomics studies. Today, we need your help to improve one of NIH's central data sharing tools for human genomic data, …
Policies and Guidance
Guidance describing NHGRI’s position on appropriate third-party involvement.
… and contract-recipients sometimes seek or receive offers of support from companies or other third parties (e.g., … after the grant or contract has been awarded. This type of third-party support, or “third-party involvement”, may be … studies and contracts, so long as the primary purpose of the studies and contracts is not compromised and National …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… a bill can go through before becoming a law. The history of the Genetic Information Nondiscrimination Act (GINA), a law that was passed in 2008 and impacts the field of genomics, provides an excellent example of the legislative process in action. … Step 1: The bill is drafted Any member of Congress – either from the Senate or the House or …
News Release
Over the last 20 years, three families have been unknowingly linked to one another by an unknown illness. Researchers at the National Human Genome Research Institute (NHGRI) and other organizations have now identified the cause of the illness, a new disease called CRIA syndrome. The results of their work were published on Dec. 11 in the journal Nature.
… the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health, and other organizations have now identified the … of the illness, a new disease called CRIA syndrome. The results were published in the journal Nature . … Daniel Kastner, M.D., Ph.D., a pioneer in the field of autoinflammatory diseases, and his team discovered CRIA, …
Policy Issues
Participar en una investigación genómica es una oportunidad para apoyar la exploración científica del genoma.
… los Institutos Nacionales de la Salud (National Institutes of Health, NIH) en su misión de entender, prevenir, detectar … Policy Issues …
Policy Issues
Hay leyes y políticas que sirven para proteger la privacidad de la información genómica de un individuo.
… de la Oficina Federal de Investigaciones ( Federal Bureau of Investigation , FBI) para las bases de datos de ADN de la … Protección de Seres Humanos en Investigaciones ( Federal Policy for the Protection of Human Subjects ), también conocida como la " Regla Común …