Search Results
Health
Genomic medicine involves using genomic information as part of clinical care and the health outcomes and policy implications of that clinical use.
… therapeutic decision-making) and the health outcomes and policy implications of that clinical use. Already, genomic … on engagement of the public, healthcare providers and policy makers in genomics topics: Education and Community Involvement Branch (ECIB) and Policy and Program Analysis Branch (PPAB) . Resources and …
Administrative
The Management Analysis and Workforce Development Branch provides advisory services, develops policies and procedures, and coordinates implementation at NHGRI.
Educational Resources
Autism is a developmental brain disorder characterized by impaired social interactions, communication problems, and repetitive behaviors.
… a developmental brain disorder characterized by impaired social interactions, communication problems, and repetitive … related to brain development that can cause significant social, communication and behavioral challenges. Symptoms … a developmental brain disorder characterized by impaired social interactions, communication problems, and repetitive …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… the large number of resources available regarding the DMS Policy, where should I start? NIH resources regarding the DMS Policy are available on the NIH Scientific Data Sharing site. … with the e-Learning Webinars, Slide Sets and Overviews on policy requirements, the NIH-wide list of FAQs, and the …
Event
A social media campaign, organized by NHGRI and its partners, that focuses on healthcare provider genomics education.
… Research Institute and its partners are organizing a social media campaign from June 5 to June 9, 2023, that … A social media campaign, organized by NHGRI and its partners, … A social media campaign, organized by NHGRI and its partners, …
Talking Glossary of Genetic Terms
Race is a fluid concept used to group people according to various factors including, ancestral background and social identity.
… to various factors including, ancestral background and social identity. … Race is a social construct used to group people. Race was constructed … into groups often based on physical appearance, social factors and cultural backgrounds. … to various factors including, ancestral background and social identity. …
Staff
Dr. Philip Shaw was an investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.
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… phenotypes pertinent to ADHD based in the neuroimaging, social and behavioral sciences, 2) identifying the genomic … using tools from the neurobiological, psychological and social sciences. This will allow advancement beyond a … Given that children are embedded in multiple social contexts, whether families, schools, or local …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… to NHGRI data sharing policies. Providing consultation for policy or practice development. …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … sources. As a leader in genomics, including relevant policy development and implementation, the National Human … from human sources, such as specimens and cell lines. The policy applies to NHGRI-funded research that will generate …