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Policy Issues
Investigaciones genómicas en las que seres humanos se encuentran bajo estudio
El uso de seres humanos en las investigaciones biomédicas, clínicas y socioconductuales puede ofrecer entendimiento y descubrimientos que no pudieran obtenerse de ninguna otra manera.
… ( Presidential Commission for the Study of Bioethical Issues ) publicó un informe titulado, Anticipar y comunicar: … Policy Issues …
The Genomics Landscape
NHGRI’s social media activities bring genomics closer to the public
In the September 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details how social media provides NHGRI staff with a space to talk about their work, make genomics topics easy to understand, and show how genomics can positively affect people.
Policy Issues
Regulación de pruebas genéticas
Las pruebas genéticas se están convirtiendo en algo más común en la práctica clínica.
… Policy Issues …
Policy Issues
Privacidad en la genómica
Hay leyes y políticas que sirven para proteger la privacidad de la información genómica de un individuo.
… Policy Issues …
Policy Issues
La propiedad intelectual y la genómica
En una decisión histórica en junio de 2013, el Tribunal Supremo determinó que el ADN en su forma natural no puede ser patentado.
… Policy Issues …
Policy Issues
Participación en una investigación genómica
Participar en una investigación genómica es una oportunidad para apoyar la exploración científica del genoma.
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Policy Issues
Consentimiento informado para la investigación genómica
Es esencial que los derechos e intereses de los participantes se respeten durante todo el proceso de la investigación.
… Policy Issues …
The Genomics Landscape
Annual meeting supports NHGRI trainees in their research and careers
In the May 2024 issue of The Genomics Landscape, NHGRI Director Eric Green talks about the NHGRI Research Training and Career Development Annual Meeting, which provides a venue to foster support and a sense of community for NHGRI-funded trainees, equipping them with tools for success and more clarity about career possibilities.
… to examining important ethical, legal, and social issues in contemporary genomics. These included sessions on … her many pieces that aims to use art to engage with social issues. The unveiling ceremony featured remarks from Monica …
Policies and Guidance
FY2021 NHGRI Funding Policy
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … below. Competing Applications: Applications that address issues relevant to the strategic vision will be given the … Programs Competing Applications: Applications that address issues relevant to the strategic plan will be given the …
News Release
Apply for NHGRI-ASHG's new education fellowship for genetics professionals
The American Society of Human Genetics and NHGRI have teamed up to sponsor the new Genetics and Education Fellowship.
… their health care and evaluate the relevant public policy issues,according to the National Human Genome Research … conduct projects and analyses on ethical, legal and policy issues. From January 2015 to September 2015, the fellow will … of genomics research into medical settings and the societal implications of this shift. "By learning to work …