Search Results
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… by the official governing body of an American Indian or Alaska Native tribe." In general, many parts of the Final Rule have …
Research Funding
The following are research areas of interest that have been identified by the participating NIH institutes, centers, and offices (ICOs) on the investigator-initiated ELSI Research Grants (R01, R21, R03). Program Officer(s) contact information is also included for each ICO.
… and accessibility of genomic research studies across all populations. May include models of genomic research that rely … and technology are translated and applied in a variety of populations and a wide range of healthcare settings. Research … health contexts; with additional emphasis on incorporating populations understudied in cancer research and addressing …
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… GMXV - American Indian/Alaska Native Community Engagement Preferences and Tribal Code …
News Release
Genomic variants that increase risk of kidney disease are found in nearly one-third of West Africans
A study from researchers at National Institutes of Health (NIH) and their collaborators revealed a significant genetic risk factor for kidney disease in people of West African ancestry.
… “This study highlights the importance of studying diverse populations around the globe when studying the genomics of … Americans, and African American, Hispanic American and Native American populations are more likely to develop the disease. Both …
Outreach
Five pieces from the Genome: Unlocking Life’s Code exhibition are now on display at the National Institutes of Health (NIH) campus in Bethesda, MD.
… cure diseases for individuals, their families, and global populations; and what the next decade holds in terms of genomic advances. A Spectrum of Perspectives: Native Peoples and Genetic Research This symposium was … History. It demonstrated the range of perspectives in Native communities on genomics and highlight key topics for …
Event
On November 16-17, 2023, the National Human Genome Institute will co-sponsor a workshop, Advances in the Genetic Architecture of Complex Human Traits, to take a historically grounded and forward-looking approach towards dissecting the genetic architecture of complex traits in humans.
… for example, more affected? Session 3 – Families, Populations, and Societies The resemblance among relatives … a.m. Session Three: Genetic Architecture – Families, Populations, and Societies Chair: Iain Mathieson, University … 9:55 a.m. An Epidemiological Lens on Precision in Study Populations and Questions for Genetic Research Gen Wojcik, …
Health
A polygenic risk score is one way by which people can learn what their risk of developing a disease is, based on the total number of genomics variants related to the disease.
… the role that genetics plays in diseases across different populations. A “ polygenic risk score ” is one way by which … may not be adequate data about genomic variants from other populations for calculating a polygenic risk score in those populations. This historic lack of diversity in genomic …
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… , sequencing in primary care American Indian and Alaska Native communities & health care systems 4 th ELSI Congress …
News Release
NIH is establishing the Multi-Omics for Health and Disease Consortium, with approximately $11 million awarded in the consortium’s first year of funding. The new consortium aims to advance the generation and analysis of “multi-omic” data for human health research.
… for clinical studies involving ancestrally diverse populations. …
The Genomics Landscape
In the March 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights a strategic planning effort to establish a 2020 vision for genomics.
… has developed a new resource for American Indian and Alaska Native Communities to learn about key aspects of genetics and … New Resource for American Indian and Alaska Native Communities …