Search Results
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … may also gain some individual benefit, such as diagnosis of a disease or access to a treatment in development. …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can provide insights and discoveries that could not … with regulations that protect the rights and welfare of the participants, and require that researchers clarify the … NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or 'Common Rule' ( Code of …
Staff
Shirley Freeman is an Intramural Program Assistant for NHGRI's Center for Research on Genomics and Global Health.
… Shirley Freeman is an Intramural Program Assistant for the Center for Research on Genomics and Global Health (CRGGH) housed under … Human Genome Research Institute, National Institutes of Health. Shirley brings over 12 years of administrative … Research Projects …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… One goal of the 21st Century Cures Act, enacted December 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … information that is collected from participants as part of federally-funded research. … To implement one of the law's privacy provisions, the National Institutes of …
Research at NHGRI
News stories and events related to research conducted by NHGRI scientists and clinicians.
… Research News and Events … News stories and events related to research conducted by NHGRI scientists and clinicians. … News stories and events related to research conducted by NHGRI scientists and clinicians. … Research at NHGRI …
News Release
NHGRI's Stacy Desine earned first place after the finals on June 29, 2018, becoming the first postbac to win the TmT competition.
… students and postdocs at the National Human Genome Research Institute (NHGRI) and other institutes at the National Institutes of Health compete in a high-energy science communications … postbac to win the TmT competition. Ms. Desine is a member of the NIH Academy Enrichment Program, funded by the NIH …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Societal Definitions, Beliefs and Norms Conceptions of Human Identity and Origins … on Genomic Equity System-Level Understanding and Use of Genomics Healthcare System and Public Health Genomics and the Rights of Individuals and Groups Law, Regulation and Policy …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research. ​
… The Centers of Excellence in ELSI Research bring investigators from multiple disciplines … Since its creation in 1990, the ELSI Research Program has supported a large body of research on a wide range of topics. ELSI research … This page lists active Notices of Funding Opportunity (NOFOs) that are most often used for …
News Release
Laura Koehly, Ph.D., has been named chief of NHGRI's Social and Behavioral Research Branch.
… Laura Koehly, Ph.D., has been named chief of the Social and Behavioral Research Branch (SBRB) in the Intramural Research Program at the National Human Research … within NHGRI." Laura Koehly, Ph.D., newly appointed chief of NHGRI's Social and Behavioral Research Branch. Credit: …
Staff
Dr. Shawn Burgess is the co-deputy director of NHGRI's Intramural Research Program.
… Ph.D. in genetics from the Johns Hopkins University School of Medicine, where he studied the genetics of mitochondrial fusion and fission in yeast. He trained with … Since 2001, he has been at the National Human Genome Research Institute, where he is a senior investigator and …