Search Results
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
… Trans-NIH Workshop to Explore the Ethical, Legal and Social Implications (ELSI) of Citizen Science … Ethical, Legal and Social Implications of Citizen Science … by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues. …
Research at NHGRI
A list of scientific and clinical research investigators at NHGRI.
… Research Investigators … A list of scientific and clinical research investigators at the National Human Genome Research Institute. … A list of scientific and clinical research investigators at NHGRI. … Research at NHGRI …
Research Funding
Frequently asked questions for Investigator-Initiated Research on Genetic Counseling Processes and Practices FOAs (RFA-HG-20-048 and RFA-HG-20-049).
… Funding Opportunity Announcements ( RFA-HG-20-048 and RFA-HG-20-049 )  Can a genetic counselor consultant … experience need(s) to be an integral part of the research team including being involved in research design, implementation, and analyses, not just providing advice and guidance.  Can I …
Research at NHGRI
NHGRI's research focuses on the understanding of human biology and developing new methods for treating disease.
… The National Human Genome Research Institute (NHGRI) conducts a broad program of laboratory and clinical research to translate genomics into a greater understanding of human biology and develop better methods for the detection, prevention and … Research Areas …
For Patients and Families
​Clinical research is research conducted with human subjects, or material of human origin, in which the researcher directly interacts with human subjects.
… Clinical research is research conducted with human subjects, or material of human … Clinical researchers at the National Human Genome Research Institute (NHGRI) are developing advanced methods … for studying the fundamental mechanisms of inherited and acquired genetic disorders. …
News Release
John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief NHGRI's Communications and Public Liaison Branch.
… a nationwide search, John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief of the Communications and Public Liaison Branch (CPLB) at the National Human Genome Research Institute (NHGRI), part of the National Institutes … Prior to joining NHGRI, Dr. Ohab led communications and social media at the U.S. Naval Research Laboratory (NRL) in …
Staff
Julie Sapp is a genetic counselor in the NHGRI in the Genomic Services Research Program (GSRP).
… team where she draws upon her genetic counseling training and over a decade of behavioral science research experience to promote the … positioned her to investigate a varied set of important social and behavioral questions related to the practice of … a genetic counselor in the NHGRI in the Genomic Services Research Program (GSRP). …
Clinical Research
FAQs for Autoinflammatory Diseases Study providers and researchers.
… listed above, or patients who are older than 1 month and who have evidence of autoinflammatory disease (such as … when we can find multiple patients with the same symptoms and genetic variants. Our team is always excited to … Ivona Aksentijevich if you would like to further discuss research opportunities. …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… When conducting clinical research studies, scientists may discover new health-related … in the studies. This raises the question of when and how it is appropriate for the scientists to look for and share such research findings. … discussions among researchers, ethicists, policymakers, and research participants about the return of individual …
Research Funding
Contacts by Research Area
… Looking for a contact in your research area? Select a category below to find a program officer and funding related to that topic. About the Categories  … Contacts by Research Area: Search … Contacts by Research Area … Contacts by Research Area … Research Funding …