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Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can provide insights and discoveries that could not be otherwise obtained using … research with human participants. In response to cases of ethical misconduct during WWII, the international scientific …
The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… fiscal year. The CR allows NHGRI to continue to function and perform most of our normal work, although we eagerly … story below ). The article highlights Dan’s distinguished and highly productive career studying human autoinflammatory … Massachusetts General Hospital, Harvard Medical School and Broad Institute Moderator: Chris Gunter, Ph.D., NHGRI …
Health
The Family Health History Group connects stakeholders, researchers, and thought leaders to share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of family health history information.
… Health History Group connects stakeholders, researchers and thought leaders to share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of … CHW, MCHES® Associate Professor Director, Health Promotion and Genomics Lab Department of Health and Kinesiology Texas …
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… In the United States and around the world, scientific institutions are developing … research. This initiative examined the clinical, ethical, legal and social implications of human gene editing. Their … Institutes of Health (NIH) with recommendations on basic and clinical research involving recombinant DNA (in which …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… to the Code, a patent may only be granted on "any new and useful process, machine, manufacture, or composition of matter, or any new and useful improvement thereof." Laws of nature, natural phenomena, and abstract ideas cannot be patented. Even if this first …
The Genomics Landscape
In the January 2024 issue of The Genomics Landscape, NHGRI Director Eric Green announces the appointment of Dr. Adam Phillippy as the founding director of the Center for Genomics and Data Science Research (CGDSR).
… Happy New Year to you and yours — and here’s to a 2024 featuring many breakthrough genomics … Last year ended with exciting news from the U.S. Food and Drug Administration (FDA), which approved two gene … Mouse genome rewriting and tailoring of three important disease loci Zhang et al. …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… Technological advances have made genetic and genomic tools faster, cheaper and more compatible with limited or older samples. Today, … used by law enforcement to investigate criminal acts. The legal system also uses genetic information to exonerate those … Federal Bureau of Investigation’s (FBI) program of support and software for criminal justice DNA databases. Law …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… them to have new abilities. Synthetic biology researchers and companies around the world are harnessing the power of nature to solve problems in medicine, manufacturing and agriculture. … bioremediation  to clean pollutants from our water, soil and air. Rice modified to produce beta-carotene , a nutrient …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… to support scientific exploration of the genome and to help NIH in its mission to understand, prevent, detect and better treat disease. In some cases, research … information about their research participants in legal proceedings, such as in the case of a subpoena. There …
The Genomics Landscape
In the May 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. notes that a number of individuals with strong ties to NHGRI have been nominated and/or appointed to serve on the White House Science Team.
… Spring is here, and with it comes many opportunities to engage in areas related to genomics and the biomedical research enterprise. Recently, NIH and the Scientific Workforce Diversity (SWD) office announced … open science and data sharing are done in ways that are ethical and equable, and that the data are shared with …