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Policy Issues
En una decisión histórica en junio de 2013, el Tribunal Supremo determinó que el ADN en su forma natural no puede ser patentado.
… su camino en el Tribunal de Apelaciones para el Circuito Federal. Este tribunal ratificó parte del fallo del juez … diagnóstica , el Tribunal Supremo lo devolvió al Circuito Federal para reexaminarlo. Tras reexaminarlo, el Circuito Federal llegó a la misma decisión que en su primer fallo, …
Policy Issues
Las pruebas genéticas se están convirtiendo en algo más común en la práctica clínica.
… de las pruebas genéticas: el CMS, la FDA y la Comisión Federal de Comercio ( Federal Trade Commission , FTC).   El CMS es responsable de … pruebas genéticas como dispositivos médicos bajo la Ley Federal de Alimentos, Medicamentos y Cosméticos ( Federal … Regulación federal de pruebas genéticas …
Policy Issues
Participar en una investigación genómica es una oportunidad para apoyar la exploración científica del genoma.
… la privacidad de su información genética, hay una ley federal titulada Ley Antidiscriminatoria sobre Información … Policy Issues …
Policies and Guidance
NHGRI is committed to maintaining a work environment that is courteous, respectful, and free from harassing behaviors for its employees, contractors, volunteers, interns and visitors. 
… Workforce Diversity October 23, 2019 NIH Anti-Harassment Policy and Videos Anti-Harassment Q&A … harassment or discrimination. NHGRI has a no-tolerance policy in this regard, and this extends to work environments …
Policies and Guidance
A list of reports, documents, workshop summaries and other works published by NHGRI.
… Advisory Council Report Certifying Compliance with the NIH Policy on Inclusion Guidelines The NIH mandate that women and … Advisory Council Report Certifying Compliance with the NIH Policy on Inclusion Guidelines The NIH mandate that women and …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… as becoming research scientists, research participants and policy makers. It is important for everyone to be informed … are multiple efforts at the intramural, extramural, and policy levels aimed at ensuring genomics benefits everyone. … Policy Issues …
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… different groups including patients, community leaders and policy makers. NHGRI uses the term "genome editing" to … Policy Issues …
Policy Issues
Es esencial que los derechos e intereses de los participantes se respeten durante todo el proceso de la investigación.
… Policy Issues …
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… Policy Issues …
Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… Policy Issues …