Search Results
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… ("private bills"), such as individual claims against the federal government or a state. Chapter: A division of each title of the Code of Federal Regulations that deals with regulations for a … or the state legislature to become effective. At the federal level, Executive Orders are published in the Federal …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Office of Science Policy … National Institutes of Health (NIH) Genomic Data Sharing Policy establishes a system to promote data sharing, while … . For more information on the NIH Genomic Data Sharing Policy, please visit NIH Genomic Data Sharing . We invite all … Data Subject to the NIH Genomic Data Sharing Policy to allow investigators to request permission to …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… Institute This website allows users to search for Federal and state laws and regulations. NHGRI’s Genome … Medical Center, this database allows users to search federal and state statutes, regulations, and reported … decisions. The database allows searches by jurisdiction (federal, state, and individuals states), source type, topic, …
Policy Issues
En una decisión histórica en junio de 2013, el Tribunal Supremo determinó que el ADN en su forma natural no puede ser patentado.
… su camino en el Tribunal de Apelaciones para el Circuito Federal. Este tribunal ratificó parte del fallo del juez … diagnóstica , el Tribunal Supremo lo devolvió al Circuito Federal para reexaminarlo. Tras reexaminarlo, el Circuito Federal llegó a la misma decisión que en su primer fallo, …
Policy Issues
Las pruebas genéticas se están convirtiendo en algo más común en la práctica clÃnica.
… de las pruebas genéticas: el CMS, la FDA y la Comisión Federal de Comercio ( Federal Trade Commission , FTC).  El CMS es responsable de … pruebas genéticas como dispositivos médicos bajo la Ley Federal de Alimentos, Medicamentos y Cosméticos ( Federal … Regulación federal de pruebas genéticas …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… that concerns about enhancement should be managed through policy and regulation. Lastly, commenters on the issue are … objections to the use of human embryos for research. Federal funds cannot be used for any research that creates or … Policy Issues …
Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is … for the Advancement of Science (AAAS) Science and Policy Fellow and as a Christine Mirzayan Science and Technology Policy Graduate Fellow. Currently, Dr. Lockhart focuses on …
Policies and Guidance
NHGRI ensures that our website is in compliance with Section 508 of the Rehabilitation Act (29 U.S.C. 794d).
… that all individuals with disabilities (whether they are federal government employees or members of the general … more about the regulations governing the accessibility of federal electronic information products, visit the United … Policy …
Policy Issues
Participar en una investigación genómica es una oportunidad para apoyar la exploración cientÃfica del genoma.
… la privacidad de su información genética, hay una ley federal titulada Ley Antidiscriminatoria sobre Información … Policy Issues …
Policies and Guidance
NHGRI is committed to maintaining a work environment that is courteous, respectful, and free from harassing behaviors for its employees, contractors, volunteers, interns and visitors.Â
… Workforce Diversity October 23, 2019 NIH Anti-Harassment Policy and Videos Anti-Harassment Q&A … harassment or discrimination. NHGRI has a no-tolerance policy in this regard, and this extends to work environments …