Search Results
For Patients and Families
The partnership engages communities on genomics, informs and shares perspectives, and impacts the focus of research.
… and guidance on the development of programs, tools, and information for various communities. Providing community …
News Release
Jeffery Schloss, Ph.D., Division of Genome Sciences director, was honored with the HHS Career Achievement Award for his work in genome sequencing technology.
… Career Achievement Award for his work in genome sequencing technology. HHS Secretary Sylvia Mathews Burwell presented … than a decade, he has led NHGRI's Advanced DNA Sequencing Technology Program that has resulted in a reduction in DNA … the Human Genome Project. Dr. Schloss transitioned to the technology development program where he ran extramural …
For Health Professionals
ISCC-PEG working groups that are no longer active. Information is kept for historical purposes.
… following ISCC-PEG working groups are no longer active. Information about these groups are retained solely for … ISCC-PEG working groups that are no longer active. Information is kept for historical purposes. … ISCC-PEG working groups that are no longer active. Information is kept for historical purposes. …
The Informed Consent Resource
Examples consent forms used by genomics research projects.
Your Genome
Information about the relationship between genomics and health for patients, families and health professionals.
… and your family. Our resources will help you find detailed information about genetic disorders, the new science of … providing health professionals with reliable, up-to-date information on the rapidly expanding field of genomics. … Information about the relationship between genomics and …
eMERGE
Important information about RFAs, upcoming dates, frequently asked questions and helpful links.
… Important information about RFAs, upcoming dates, frequently asked … What information can be used to formulate a genomic risk … present in non-European populations or describing how the information will be used in populations where the variants … patient. The goal is to capture the impact of genomic risk information on patients’ outcomes, which must be done …
Talking Glossary
CRISPR (short for “clustered regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify the DNA of living organisms.
… regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify … regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify … regularly interspaced short palindromic repeats”) is a technology that research scientists use to selectively modify …
Educational Resources
A family history is a record of medical information about an individual and their biological family.
… A family history is a record of medical information about an individual and their biological family. … A family history is a record of medical information about an individual and their biological family. …
News and Events
A collection of institute resources, background information, and points of contact for members of the press.
… A collection of institute resources, background information, and points of contact for members of the press. … A collection of institute resources, background information, and points of contact for members of the press. …
Staff
Rebecca Hong is a scientific program analyst in the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… School of Foreign Service in 2015 with a B.S. in science, technology and international affairs, with a concentration in … Rebecca Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS research, genome editing … Rebecca Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS research, genome editing …