Search Results
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… independent NIH research support during this transition in order to help awardees to launch competitive, independent … Lessons, the Domestic Legal Landscape, and Options for U.S Policy Anya Prince 2015 Summary Statement Full Application … and Social Implications of Translational Psychiatric Genomics Research Gábriel Lazaro-Muñoz 2014 Summary Statement …
Research Funding
The ELSI Publications and Products Database organizes publications for ELSI projects and activities by the last name of the principle investigator.
… Since its creation in 1990, the Ethical, Legal and Social Implications (ELSI) … activities-through grants and contracts. This has resulted in many peer reviewed journal articles, books, newsletters, … educational materials. Many of these products are included in this database (updates are still in progress). However, …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… continue to be optimistic that we will find ourselves in very different COVID-19 circumstances by next Thanksgiving. I was remiss in making you aware of an important National Institutes of … highlights the “Guiding Principles and Values for Human Genomics” described in the recently published 2020 NHGRI …
The Genomics Landscape
In the October 2024 issue of The Genomics Landscape, NHGRI Director Eric Green welcomes James Thomas as the new director for NIH Intramural Sequencing Center (NISC).
… address to the entering class at Spelman College in Atlanta, Georgia. Since most of the students in attendance … are not majoring in the sciences, I focused on how genomics is increasingly relevant in our everyday lives. It … an excellent opportunity to gain experience in genomics policy, education, communications, or program management. …
News Release
The National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should obtain, share and access genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and implementation, the National Human Genome Research Institute (NHGRI) encourages data sharing practices that go beyond the NIH expectations.
… National Institutes of Health (NIH) Genomic Data Sharing Policy includes expectations for how researchers should … genomic data from human and non-human sources. As a leader in genomics, including relevant policy development and … from human sources, such as specimens and cell lines. The policy applies to NHGRI-funded research that will generate …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… Nondiscrimination Act (GINA), a law that was passed in 2008 and impacts the field of genomics, provides an excellent example of the legislative process in action. … If a Representative is the sponsor, the bill is introduced in the House. If a Senator is the sponsor, the bill is …
The Genomics Landscape
In the September 3, 2020 edition of The Genomics Landscape, Dr. Eric Green talks about the Impact of Genomic Variation on Function (IGVF) Consortium, the 2020 Genomic Innovator Awards and more.
… from home. If you are seeking some virtual connections to genomics, I would like to offer some “remote learning” … Director) and I answered questions about bioethics and genomics research on Twitter as part of #AskDrGenome . … 30th anniversary of the launch of the Human Genome Project in October 2020. Check out the latest oral histories by …
The Genomics Landscape
In the October 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., introduces us to new scientific director Charles Rotimi, Ph.D., his background and prior accomplishments.
… to bring to your attention a spectacular recent feature in Science that describes the remarkable work of NHGRI’s … diverse backgrounds will benefit equitably from advances in human genomics. Speakers: Robert Winn, M.D., Virginia Commonwealth … and led major basic science and clinical research projects in human genomics. He is a leader in the development of …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can … clarify the benefits and risks of participating in the research. … funded by or carried out at NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… about volunteers who have chosen to participate in the studies. This raises the question of when and how it … and incidental findings (IFs) from genomic research. These issues are not new or unique to genomics, but advances in … to examine these questions and inform future NHGRI policy. …