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Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… were issued in 1982, following the U.S. Supreme Court case of Diamond vs. Chakrabarty, which opened the door to … patenting biotechnology discoveries. Since then, the core of the debate over gene patents has been whether or not the … databases within 24 hours of being generated. This policy of open access to the genome has been a core ethos of …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … may also gain some individual benefit, such as diagnosis of a disease or access to a treatment in development. … A wide range of genomic research studies need participants, each with …
Policies and Guidance
NHGRI is committed to maintaining a work environment that is courteous, respectful, and free from harassing behaviors for its employees, contractors, volunteers, interns and visitors.Â
… on (301) 402-4845 File an EEO complaint through the Office of Equity, Diversity, and Inclusion at www.edi.nih.gov/resolutions Contact the Office of Intramural Training and Education if you are a trainee or … NIH Climate Survey Results - November 2019 General Facts of the Survey for NHGRI NIH Workplace Climate and Harassment …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… information to exonerate those who have been convicted of crimes they did not commit. This page provides information on the method and scope of these new techniques and tools, along with a discussion of their ramifications with respect to privacy. … The Combined DNA Index System (CODIS) is the Federal Bureau of Investigation’s (FBI) program of support and software for …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… For patients to have full access to the benefits of genetic testing, payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement. … capacity to revolutionize clinical practice. The mapping of the human genome has created new opportunities for genetic …
Staff
Leonard Ross is the director of the Ethics Branch at the National Human Genome Research Institute.
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… Leonard Ross, J.D., M.B.A., is the director of the Ethics Branch and the ethics coordinator of the National Human Genome Research Institute (NHGRI) at the National Institutes of Health (NIH). Mr. Ross has a Bachelor's and Master's … Leonard Ross is the director of the Ethics Branch at the National Human Genome Research …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… As February begins, many of us at NHGRI are working hard in preparation for the upcoming 101st meeting of the National Advisory Council for Human Genome Research . I invite you to watch the Open Session of our council meeting starting at 10:30 a.m. ET on Monday, …
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… It is essential to respect the rights and interests of research participants, given that their contributions, … health-related information, are critical for the success of most human scientific research. Researchers and research … For instance, the NIH Genomic Data Sharing (GDS) policy expects that researchers obtain consent when they plan …
Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… (NHGRI) in 2012 as a program director in the Division of Genomics and Society. Dr. Lockhart oversees a portfolio of research and career development grants related to the … (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… to participate in the research needed for the development of new tests, therapies, and cures. This page provides an overview of the Genetic Information Nondiscrimination Act (GINA) and … The Genetic Information Nondiscrimination Act (GINA) of 2008 protects Americans from discrimination based on their …