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Educational Resources
An animal model is a non-human species used in medical research because it can mimic aspects of a disease found in humans.
… in humans. Animal models (e.g., mice, rats, zebrafish and others) are sufficiently like humans in their anatomy, … animal model studies to better understand human physiology and disease. By using animal models, researchers can perform …
Research at NHGRI
The goal of our Caregiving Study is to understand how caregivers manage the demands of caring for a loved one with a long-term health condition and how social relationships affect caregivers' ability to cope.
… caregiving can have harmful effects on caregivers’ health and well-being. Our Caregiving Study explores the impact of caregiver stress over time and how social relationships affect their ability to cope with … JA. Interconnected social convoys: Understanding health and well-being through linked personal networks . Advances in …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… in the studies. This raises the question of when and how it is appropriate for the scientists to look for and share such research findings. … discussions among researchers, ethicists, policymakers, and research participants about the return of individual … and incidental findings (IFs) from genomic research. These issues are not new or unique to genomics, but advances in …
Event
The National Human Genome Research Institute and its partners are organizing a social media campaign from June 7-11, 2021, that focuses on healthcare provider genomics education.
… available. The National Human Genome Research Institute and its partners are organizing a social media campaign from June 6-10, 2022, that focuses on … will include panel discussions, webinars, Twitter chats and Q&As. Follow on Twitter: #MedGeneEd22 … The National Human Genome Research Institute and its partners are organizing a social media campaign from …
Event
The National Human Genome Research Institute and its partners are organizing a social media campaign from June 7-11, 2021, that focuses on healthcare provider genomics education.
… of Pharmacy (AAFP) American College of Medical Genetics and Genomics (ACMG) American Board of Medical Genetics and Genomics (ABMGG) and University of Colorado American College of Clinical … available. The National Human Genome Research Institute and its partners are organizing a social media campaign from …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… The health and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good policy. … The National Human Genome Research Institute (NHGRI) and the American Society for Human Genetics (ASHG) are …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state … The Genome Statute and Legislation Database is reviewed and updated monthly. Searchable topics in the database … Cornell Legal Information Institute This website allows users to …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… applications or other uses. This page summarizes genetic and genomic privacy in these domains, along with information on the specific laws and policies that protect the privacy of genetic and genomic information. In the United States, the applicable … privacy.  Federal laws like the Common Rule  and the Health Insurance Portability and Accountability Act …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… needed for the development of new tests, therapies, and cures. This page provides an overview of the Genetic Information Nondiscrimination Act (GINA) and describes what protections GINA does and does not offer. … genetic information in both health insurance (Title I) and employment (Title II). Title I amends the Employee …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database. … published in volumes printed by the state or by a private legal publisher. Statute: A law that has been enacted (passed …