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Policies and Guidance
A list of reports, documents, workshop summaries and other works published by NHGRI.
… Advisory Council Report Certifying Compliance with the NIH Policy on Inclusion Guidelines The NIH mandate that women and … Advisory Council Report Certifying Compliance with the NIH Policy on Inclusion Guidelines The NIH mandate that women and …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… as becoming research scientists, research participants and policy makers. It is important for everyone to be informed … are multiple efforts at the intramural, extramural, and policy levels aimed at ensuring genomics benefits everyone. … Policy Issues …
Policy Issues
Scientific institutions are developing recommendations to support the responsible use of human gene-editing research.
… different groups including patients, community leaders and policy makers. NHGRI uses the term "genome editing" to … Policy Issues …
Policy Issues
Es esencial que los derechos e intereses de los participantes se respeten durante todo el proceso de la investigación.
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Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
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Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
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Policies and Guidance
Frequently Asked Questions regarding the Update to NIH Management of Genomic Summary Results Access.
… What are the options under the NIH GDS Policy for sharing GSR? …
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… Policy Issues …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
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Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… Policy Issues …