Search Results
Policies and Guidance
Frequently Asked Questions regarding the Update to NIH Management of Genomic Summary Results Access.
… What are the options under the NIH GDS Policy for sharing GSR? …
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… Policy Issues …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing
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… Policy Issues …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… Policy Issues …
Policies and Guidance
​A site map listing all pages on genome.gov, the official website of the National Human Genome Research Institute.
Staff
Joy Boyer was a program director in NHGRI's Division of Genomics and Society.
… Joy Boyer, societal issues, social policy, ethical legal and social implications, newborn …
News Release
John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief NHGRI's Communications and Public Liaison Branch.
… CPLB is part of the Division of Policy, Communications, and Education (DPCE), whose mission … Audiences include researchers, healthcare providers, policy makers, the public and the news media. "The National … and Public Liaison Branch, CPLB, Division of Policy, Communications, and Education (DPCE), communications …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… opportunities, solicit expert commentary, obtain advice on policy or legislation, and arrange mentor/mentee … sharing in biomedical research, NIH released the Final NIH Policy for Data Management and Sharing in October 2020. The policy applies to all NIH-funded research and will go into …
News Release
The National Human Genome Research Institute (NHGRI) has selected Valentina Di Francesco as the Institute’s first chief data science strategist and director of its new Office of Genomic Data Science. In this role, she will provide leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science. NHGRI is part of the National Institutes of Health (NIH).
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. … among the different Genomics and Society research and policy components of NHGRI (noting that formal oversight of … Ethics Issues In Genomics, Policy Issues In Genomics, Legal Issues In Genomics, Genomics …