Search Results
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… This webpage discusses genomics-relevant considerations for informed consent and provides guidance on how to approach … about the risks and benefits of participating in a research project. … process and consent form should reflect the research uses for which samples, genomic data, and health information might …
Research at NHGRI
NHGRI center focused on computationally intensive approaches to analyze large-scale genomic data and identifying genetic contributions to human disease.
… The Center for Genomics and Data Science Research focuses on the development and application of … approaches to untangle the complexities of the genome and uncover genomic associations with health and … genomes of thousands of species and opening new avenues for studying genomic function and disease. Their efforts in …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires additional protections for sensitive information that is collected from participants … the policy will become a term and condition of award for grant recipients collecting relevant types of data. …
News Release
Washington University in St. Louis awarded an honorary Doctor of Science to Eric D. Green, M.D., Ph.D., for his contributions to the field of genomics.
… to medicine. Dr. Green, director of the National Human Genome Research Institute (NHGRI), received the degree during the … of the National Institutes of Health, is the driving force for advancing genomics and accelerating scientific and … in the Human Genome Center at Washington University. For over two decades, Dr. Green's research program was at the …
News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… a path towards collaborative, community-driven genomics research. … In August 2020 the Centers for Disease Control and Prevention identified that Indigenous … a workshop on genomic research with the National Human Genome Research Institute (NHGRI), part of the National …
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… "Ask Me Anything" (AMA) with members of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications Research Program, a part of the Division of Genomics and … availability of genomic information elevate the need for research on the resultant ethical, legal and social …
The Genomics Landscape
In May 4, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details a report released by the National Academies of Science, Engineering, and Medicine, that provided a series of recommendations for using population descriptors in future genetics and genomics studies.
… April 2023 was a notably festive month for NHGRI, as we celebrated three anniversaries — the 70th … the 20th anniversary of the completion of the Human Genome Project, and the 20th anniversary of National DNA Day. … are available. As someone who previously led an active research program in comparative genomics, I was pleased to …
News Release
The zebrafish is a powerhouse tool that helps researchers better understand the genes that are implicated in disease.
… wee creature is making big waves in the sea of genomics research. The zebrafish is a powerhouse tool that helps … are implicated in disease. And, here at the National Human Genome Research Institute (NHGRI), researchers are advancing … want knocked out," said Dr. Sood. "It's a service provided for NHGRI investigators." Usually the genes are selected …
Diversity Center
The Pacific Center for Genome Research (PCGR) at the University of Hawaii at Manoa (UHM) aims to grow and support Genomic Research workforce at UHM, a Minority Serving Institution (MSI), which has a mission to serve historically underrepresented population in biomedical research, namely, Native Hawaiians and other Pacific Islanders.
… The Pacific Center for Genome Research (PCGR) at the University of Hawaii at Manoa (UHM) aims to grow and support Genomic Research workforce at UHM, a Minority Serving Institution … Foster excellence in genomics research and grow and support the genomics workforce by …
The Genomics Landscape
In the July 2023 edition of The Genomics Landscape, NHGRI Director Eric Green describes the evolution of the NHGRI Intramural Research program over the last three decades talks about its future in conducting truly exceptional basic, translational, and clinical genomics research.
… developed a new tool to help scientists study how a single genome creates all the distinct cells of the human body. The … same exact DNA, which provides the genetic instructions for producing the proteins essential for living. However, … development.  This research was funded by NIH with a grant to Steven Henikoff, Ph.D. , who is a faculty member at …