Search Results
Research at NHGRI
The goal of our Caregiving Study is to understand how caregivers manage the demands of caring for a loved one with a long-term health condition and how social relationships affect caregivers' ability to cope.
… explores the impact of caregiver stress over time and how social relationships affect their ability to cope with … Koehly LM, Manalel JA. Interconnected social convoys: Understanding health and well-being through … responsibility and network collaboration in caregiving . Social Networks . 74. 236-244. 10.1016/j.socnet.2023.05.002 …
News Release
NHGRI has appointed Chris Gunter, Ph.D., as a senior advisor for genomics engagement. In this role, Dr. Gunter will advise the NHGRI director and the institute on issues and challenges associated with engaging the public about genomics and genomic medicine.
… join the NHGRI Division of Intramural Research in its Social and Behavioral Research Branch , heading the new … The unit will continue her research investigating primate social behavior and autism genetics, as well as evaluating … Chris Gunter, public engagement, genomic medicine, primate social behavior, autism genetics, primate social behavior …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… is best for those individuals. On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion … On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel … On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel …
News Release
NHGRI researchers and colleagues are calling for health disparities research that focuses on the microbiome.
… on us -- are both influenced by people's environments and social interactions. As a result, the microbiome and health … shedding light on how a person's microbiome interacts with social and environmental factors," said Vence L. Bonham, Jr., … co-author and associate investigator in NHGRI's Social and Behavioral Research Branch . "Social scientists …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… It is also necessary to understand ethical, legal and social issues including utilization of genomic information, … as becoming research scientists, research participants and policy makers. It is important for everyone to be informed … genomics research and to understand the ethical, legal and social implications resulting from genetics and genomics …
Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… the NIH definition of metadata provided in the Final NIH Policy for Data Management and Sharing : Metadata  are “data … The NIH GDS Policy  states that NIH-funded researchers generating genomic …  builds upon the expectation outlined in the NIH GDS Policy and emphasizes the importance of sharing comprehensive …
Policies and Guidance
Guidance describing NHGRI’s position on appropriate third-party involvement.
… investigators that are subject to the NIH Data Sharing Policy or the NIH Genomic Data Sharing (GDS) Policy , excluding grantees or contractors funded through the … issues that conflict with Public Health Service (PHS) policy on grants or contracts (particularly as to reporting, …
Research Funding
The ELSI Publications and Products Database organizes publications for ELSI projects and activities by the last name of the principle investigator.
… Since its creation in 1990, the Ethical, Legal and Social Implications (ELSI) Research Program has funded … Ethical Issues In Genomics, Legal Issues In Genomics, Social Issues In Genomics, Ethical Issues In Genetics, Legal Issues In Genetics, Social Issues In Genetics, Genetic Discrimination, …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… purposes. Please see the " What are the ethical and social implications ?" section of this resource to learn … as laid out by the Dual Use Research of Concern (DURC) policy. For more information about the biosecurity policies … and publications: Resources Related to the Ethical and Social Implications of Synthetic Biology: Biodefense in the …
Policies and Guidance
A list of reports, documents, workshop summaries and other works published by NHGRI.
… Advisory Council Report Certifying Compliance with the NIH Policy on Inclusion Guidelines The NIH mandate that women and … Advisory Council Report Certifying Compliance with the NIH Policy on Inclusion Guidelines The NIH mandate that women and … NHGRI's Extramural Research Program. Ethical, Legal, and Social Implications (ELSI) Reports Genetic testing, …