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News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… prabarna ganguly, ph.d. … a workshop led by alaska native people provides a path towards collaborative, … peoples in numerous datasets and analyses used to make health policy decisions. while issues of inclusion persist, …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
board (irb) training program for american indians and alaska natives at the national institutes of health (nih). irbs are committees, at nih and at other … research center. dr. villegas is an enrolled member of the native village of afognak in kodiak, alaska . "i was focused …
Staff
Dr. Sara Chandros Hull is the director of NHGRI's Bioethics Core.
… a ph.d. from the johns hopkins program in law, ethics and health in 1999. her graduate training focused on social … research ethics training programs with american indian and alaska native tribal irbs and research review committees. dr. hull …
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… our understanding of the impact of genomic variants on health and disease. it is now possible to sequence an … materials (national advocacy network) american indian & alaska native genetics resource center (national congress of …
File
… DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health … and Pacific Islanders (Haw /Pac), 3. 8% American Indian/ Alaska Native (AI/AN), 1.6% reported identification of more than one …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… which participants were not informed of the risks to their health of study participation, or were denied critical … with participating in research. for american indian and alaska native communities, for example, the  national congress of …