Search Results
News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… A workshop led by Alaska Native people provides a path towards collaborative, … and Prevention identified that Indigenous groups such as Alaska Native and American Indian people were at a higher risk for … Alaska Native people have been historically underrepresented …
News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… among the unexpected outcomes of the Institutional Review Board (IRB) training program for American Indians and Alaska Natives at the National Institutes of Health (NIH). IRBs are committees, at NIH and at other … core. "I began to understand that American Indians and Alaska Natives have a much more community-focused culture and …
About NHGRI
The Board of Scientific Counselors evaluates the NHGRI intramural research programs and provides periodic technical and scientific peer review.
… The Board of Scientific Counselors previews and evaluates the … The Board of Scientific Counselors previews and evaluates the … in the Division of Intramural Research (DIR). Board members meet, at the call of the chair, throughout the … research branches and at least once a year for the full board meeting at which they present their evaluations. Board …
Clinical Research
The Institutional Review Board (IRB)Â is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… The Institutional Review Board (IRB) is responsible for protecting the rights and … is provided by a centralized NIH Institutional Review Board Office (IRBO) located within the Office of Human … National Institutes of Health (NIH) Office of Human Research Protections NIH Ethics …
Health
The Family Health History Group connects stakeholders, researchers, and thought leaders to share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of family health history information.
… The Family Health History Group connects stakeholders, researchers and … potential solutions related to the collection of family health history information. Multi-disciplinary, volunteer members come from government, industry, health care, research, advocacy and policy backgrounds, and …
Health
Knowledge of your family health history can help you and your healthcare providers identify patterns of inheritance and risk factors.
… Knowledge of your family health history can help you and your healthcare providers … Modernizing family health history: achievable strategies to reduce … Researchers build a statistical model using family health history to improve disease risk assessment May 1, 2019 …
Health
Guidance on collecting your family health history information before visiting the doctor.
… Find out how learning your family's health history can help you discover your genomic heritage … General's Family History Initiative, the My Family Health Portrait  is a website that helps you create your own family health history. Using any computer, an Internet connection …
Careers and Training
The Health Disparities Unit (HDU) in the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI) is recruiting a postdoctoral fellow interested in the study of the intersection of genomics, social determinants of health and health inequities.
… The Health Disparities Unit (HDU) in the Social and Behavioral … of the intersection of genomics, social determinants of health and health inequities specifically relating to the integration of … spectrum of disorders from those that have a major public health impact to rare genetic conditions with significant …
Health
Information about genomics competencies, patient care, and related partnership and outreach activities at NHGRI.
… is growing and ever-changing, and it’s crucial for health professionals to have a firm understanding of genomics … For Health Professionals … Health …
For Patients and Families
FAQs about genetic disorders, the impact of genomics on your health, and the emerging science of pharmacogenomics.
… about genetic disorders, the impact of genomics on your health, and the emerging science of pharmacogenomics. … Health FAQs … about genetic disorders, the impact of genomics on your health, and the emerging science of pharmacogenomics. ​​ ​ … Family Health History, Pharmacogenomics, Undiagnosed Disease, …