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News Release
American Indians and Alaska Natives IRB training programs at NIH ensure the welfare of people participating in federally regulated research.
… the institutional review board (irb) training program for american indians and alaska natives at the national … soon after successfully recruiting the first two american indian participants to the nih irb training program in 2014. … on maternal and child health research with american indian populations ," dr. around him said. "i didn't see myself as …
News Release
Researchers at the National Institutes of Health (NIH) question advertisements by direct-to-consumer genetic ancestry kits that claim to know what it really means to be American Indian.
… kits that claim to know what it really means to be american indian . … when sara hull, phd. and hina walajahi traveled to … ancestry. so, a test that claims an individual has native american ancestry, could be wrong. hull soon recognized that …
News Release
A 2018 workshop led by Alaska Native people provides a path towards collaborative, community-driven genomics research.
… that indigenous groups such as alaska native and american indian people were at a higher risk for covid-19. researchers … there is an expanding effort to include indigenous populations like alaska native people in genomic analyses to …
News Release
NHGRI researchers and their collaborators, have successfully used facial analysis software to diagnose Noonan syndrome in Africans, Asians and Latin Americans.
… their findings in the september 2017 issue of the american journal of medical genetics . … while noonan … in nhgri's medical genetics branch . although from diverse populations , the participants in the study had some common … inherited diseases around the world, including asia, the indian subcontinent, the middle east, south america and …
Research Funding
The PAGE Consortium investigates ancestrally diverse populations to gain a better understanding of how genetic factors influence susceptibility to disease.
… need to further explore initial findings in non-european populations . the population architecture using genomics and … 100,000 african americans , asian americans , american indians , european americans , hispanic americans , … … the page consortium investigates ancestrally diverse populations to gain a better understanding of how genetic …
Policy Issues
NHGRI wants to ensure that all populations benefit from the advances of genomics research.
… genome research institute (nhgri) wants to ensure that all populations benefit from the advances of genomics research, … and minority health resources hhs and nih resources american indian and alaska native communities and genetics research …
Research Training
This program provides doctoral and medical graduates the opportunity to use genomic approaches to advance the growing area of health disparities research
… or behavioral research related to health disparate populations and the medically underserved, but also strives … not limited to, african americans , hispanic americans , american indians /alaska natives, native hawaiians, pacific … clinical research, behavioral research, health disparate populations , medically underserved populations … this …
News Release
NHGRI researchers have successfully used facial recognition software to diagnose a rare, genetic disease in known as DiGeorge syndrome.
… often can't pinpoint the disease, especially in diverse populations . the goal of the study, published march 23, 2017, in the american journal of medical genetics , is to help healthcare … inherited diseases around the world, including asia, the indian subcontinent, the middle east, south america and …
Policy Issues
Informed consent shows respect for personal autonomy and is an important ethical requirement in research.
… and learn how genomic variation is distributed among populations . increasingly, research participants' samples, … tissue donation materials (national advocacy network) american indian & alaska native genetics resource center (national …
File
… ELSI 2.0 • ASHG • Genetic Alliance • National Congress of American Indians • Global Alliance for Genomics and Health …