Search Results
Administrative
The Ethics Branch provides leadership, guidance and advice to NHGRI employees regarding ethical standards of conduct.
… The National Human Genome Research Institute (NHGRI) Office of Ethics assists NHGRI employees to adhere to the Standards of Ethical Conduct for Employees of the Executive Branch and the … of Health (NIH) are dedicated to upholding the highest standards for patient safety and the ethical conduct of …
Staff
Leonard Ross is the director of the Ethics Branch at the National Human Genome Research Institute.
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… Leonard Ross, J.D., M.B.A., is the director of the Ethics Branch and the ethics coordinator of the National Human Genome Research Institute (NHGRI) at the National Institutes of Health (NIH). Mr. Ross has a Bachelor's and Master's … Leonard Ross is the director of the Ethics Branch at the National Human Genome Research …
News Release
Four NIH grants will support research on the ethical, legal and social questions raised by genomics research advances and genomic information.
… Four new grants from the National Institutes of Health will support research on the ethical, legal and social questions raised by advances in genomics research and the increasing availability of genomic information. The awards will fund researchers at … The projects will examine the use of genomic information in the prevention and treatment of …
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… On Monday, January 29, 2018, the National Institutes of Health will hold a Reddit "Ask Me Anything" (AMA) with members of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social Implications Research Program, a … Impact on Society Members of the media and public are invited to ask questions, or …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research. ​
… The Centers of Excellence in ELSI Research bring investigators from … ways to address important new, or particularly persistent, ethical, legal, and social issues related to advances in … 1990, the ELSI Research Program has supported a large body of research on a wide range of topics. ELSI research …
Policy Issues
Most ethical discussions about genome editing center on human germline editing because changes are passed down to future generations.
… Most of the ethical discussions related to genome editing center around … whether or not germline editing should be permissible. As of 2014, there were about 40 countries that discouraged or … including 15 nations in Western Europe, because of ethical and safety concerns. 3  There is also an …
News Release
The Clinical Sequencing Exploratory Research Consortium has offered an ethical framework to guide pediatricians in pursuing clinical sequencing studies.
… technologies, genome sequencing carries the possibility of incidental or "secondary" findings that can reveal … states. Pediatricians, in particular, face complicated ethical questions about what information they should … and to whom, when genome sequencing uncovers signs of possible genetic risk for disease in patients who are too …
Research Funding
The three research domains to be considered for support by the NHGRI Ethical, Legal and Social Implications Research Program.
… Societal Definitions, Beliefs and Norms Conceptions of Human Identity and Origins … on Genomic Equity System-Level Understanding and Use of Genomics Healthcare System and Public Health Genomics and the Rights of Individuals and Groups Law, Regulation and Policy …
Event
To bring together communities of researchers working in machine learning (ML), NHGRI hosted the Machine Learning in Genomics: Tools, Resources, Clinical Applications and Ethics workshop on April 13-14, 2021.
… a.m. - Welcome Co-chairs: Trey Ideker, Ph.D. , University of California San Diego Mark Craven, Ph.D. , University of Wisconsin Speaker: Eric Green, M.D., Ph.D. , Director, …   2:15 p.m. - Q&A Session 2:45 p.m. - Break Session 2: Ethical, Legal and Social Implications (ELSI) of machine …
Research Funding
Applications demonstrating excellent grantsmanship, grant mechanisms and research methodologies common to ethical, legal and social implications research.
… Sample Applications and Summary Statements The purpose of the NIH Pathway to Independence Award (K99/R00) program is to facilitate a timely transition of outstanding postdoctoral researchers with a research … Policy Anya Prince 2015 Summary Statement Full Application Ethical, Legal, and Social Implications of Translational …