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Educational Resources
Genetic testing is the use of a laboratory test to look for genetic variations associated with a disease.
… Genetic Testing … Genetic testing is the use of a laboratory test to look for genetic … Genetic Variation, Genetic Testing, Genetic Counselor, Newborn Screening, Family Health … Genetic testing is the use of a laboratory test to examine an … passing on a genetic mutation to their offspring. Genetic testing may be performed prenatally or after birth. Genetic …
News Release
A simple blood draw is replacing a giant needle to the belly for testing their fetuses for a range of genetic disorders.
… breathing a collective sigh of relief now that a simple blood draw is replacing a giant needle to the belly for testing their fetuses for a range of genetic disorders. This non-invasive blood test, combined with advances in genomic medicine, has … they view the related ethical issues." Through a simple blood test, physicians will soon be able to determine the …
Funding Opportunities Test Page
Funding Opportunities Test Page
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
… including laboratories conducting clinical genetic testing, through its CLIA program. CLIA refers to the … must pass in order to legally conduct clinical testing. The objective of CLIA is to determine clinical testing quality, including verification of the procedures …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… For patients to have full access to the benefits of genetic testing, payers such as insurance companies and Medicare need … patients to have full access to the benefits of genetic testing, payers such as insurance companies and Medicare need … lack of extensive data evaluating the economics of genetic testing. This makes it even more difficult to evaluate which …
For Patients and Families
​Genetic tests may be used to identify increased risks of health problems, to choose treatments, or to assess responses to treatments.
… Genetic testing uses laboratory methods to look at your genes, which … results might mean to you and your family. Because genetic testing tells you information about your DNA, which is shared … sometimes a genetic test result may have implications for blood relatives of the person who had testing. …
Fact Sheets
Newborn screening tests use a dried blood sample collected during the first week after birth to measure the presence of disease biomarkers.
… Newborn screening tests use a dried blood sample collected during the first week after birth to … all of the current newborn screening tests use a dried blood sample collected during the first week after birth to … and storing newborn genome sequences versus newborn blood specimens? Clinicians, scientists, bioethicists and …
Healthcare Provider Genomics Education Resource
An FAQ designed to help healthcare professionals understand the diverse landscape of direct-to-consumer (DTC) genetic testing and the benefits and limitations of these tests.
… Direct-to-Consumer Genetic Testing for Healthcare Professionals   What is direct-to-consumer genetic testing?   Direct-to-consumer genetic tests (DTC-GT) are … or the use of health insurance to cover the cost of testing.  MedlinePlus Genetics gives an overview of DTC-GT …
News Release
NIH-led study finds genetic markers that explain up to 12% of the differences between two people’s blood pressure.
… explain up to 12% of the differences between two people’s blood pressure. … as  genomic loci , that appear to influence a person’s blood pressure. Results of the study also point to several … Genetics , is one of the largest such genomic studies of blood pressure to date, including data from over 1 million …