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Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally … genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely … technologies. Data pertinent to the interpretation of genomic data — such as associated phenotype data (e.g., …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a …
Office of Genomic Data Science
NHGRI is committed to increase the availability of educational and research opportunities in computational genomics and data science (CGDS).
… and research opportunities in computational genomics and data science (CGDS). Through recent funding announcements for … cloud workspaces, tools, and services available on NHGRI's Genomic Data Science Analysis, Visualization, and Informatics … based CGDS analyses. Together, the Hub, Sites and NHGRI’s Genomic Data Science Community Network will create a …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… … The National Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to … large-scale human and non-human projects that generate genomic data. This includes research conducted with the …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… The NHGRI Data Sharing Governance Committee is responsible for the … Members  Erin M. Ramos, Ph.D., MPH Co-chair Division of Genomic Medicine  Barbara Thomas, Ph.D. (DAC Chair) Co-Chair …  Executive Secretary  Elena Ghanaim, M.A. Office of Genomic Data Science  … NHGRI Data Sharing Governance …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the …
The Genomics Landscape
In 2022, The Genomics Landscape spotlighted genomic data sharing each month in a series of entries. This page contains a collection of each of those entries.
… Landscape Originally published: January 13, 2022  Data sharing is central to the field of genomics. Both human and non-human genomic data have been widely shared through public data … the power of scientific investigation by allowing genomic data to be combined across studies, and accelerates …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… selected as a @GA4GH Driver Project! These are real-world genomic data initiatives that help develop and pilot GA4GH standards … September 29, 2023 … LinkedIn … The Office of Genomic Data Science (OGDS) was established in 2021 to: …
The Genomics Landscape
In the April 2024 issue of The Genomics Landscape, NHGRI Director Eric Green details how the Office of Genomic Data Science (OGDS) is becoming the epicenter for genomic data science at the institute, with numerous collaborations, projects and activities.
… of Charles Rotimi, Ph.D. …  With rapid advances in genomic technologies seen over the last two decades, … are now regularly generating massive amounts of genomic data. To meet the growing needs of the field, NHGRI …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Institute, we believe that broadly sharing research data will result in maximum public benefit, and we're committed to providing researchers with access to genomic data. The National Institutes of Health (NIH) Genomic Data Sharing Policy establishes a system to promote …