Search Results
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… The Genome Statute and Legislation Database is comprised of state statutes and bills …  provides the total number of states that have enacted legislation on the topics in the database, together with a description of each topic. The Genome Statute and Legislation Database is reviewed and updated monthly. …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… The Genome Statute and Legislation Database is comprised of state statutes and bills … state legislative sessions. … The Genome Statute and Legislation Database is reviewed and updated monthly. … state laws and regulations. NHGRI’s Genome Statute and Legislation Database does not include regulations. LawSeqSM …
Policy Issues
This glossary contains definitions for commonly used terms (such as "bill", "statute", "regulation" and more) found in the Genome Statue and Legislative Database.
… for signature. European Union (EU) Directive: A type of legislation promulgated by the European Parliament and the … objectives. Directives must be implemented in national legislation in accordance with the procedures of the …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… Program ( PAR-18-735 ). …  As genomics advances, relevant legislation must advance with it, such as new laws related to … tools exist for organizing and searching federal-level legislation, fewer resources are available for state-level legislation. That is why in 2014, NHGRI created the Genome …
Educational Resources
The Genetic Information Nondiscrimination Act (GINA) is federal legislation that makes it unlawful to discriminate against individuals on the basis of their genetic profiles in regard to health insurance and employment.
… Information Nondiscrimination Act (GINA) is federal legislation that makes it unlawful to discriminate against … … Genetic Information Nondiscrimination Act, GINA, Federal Legislation, Ethics, Genetic Information, Healthcare … The … Nondiscrimination Act (abbreviated GINA) is federal legislation in the United States that protects individuals …
Staff
Rebecca Hong is a scientific program analyst in the Policy and Program Analysis Branch at the National Human Genome Research Institute.
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… regulation of genomic technologies and U.S. science policy legislation. Rebecca also serves as NHGRI's liaison with the … Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS research, genome editing … Rebecca Hong, genomic policy, FDA regulation, genomic technology, legislation, AIDS research, genome editing … Rebecca Hong is …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… Issues In Genomics, Legal Issues In Genomics, Genomics Legislation, Privacy And Genomics, Genetic Information …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… is the official government website that tracks federal legislation. Step 3: The bill goes to committee As soon as a … public officials and supporters, and opponents of the legislation to be put on the record . If the committee does … bill to the " floor ". If a committee votes not to report legislation to the full chamber of Congress, the bill dies. …
Event
NHGRI commemorates the life and legacy of genomics champion Representative Louise M. Slaughter (D-N.Y.), who passed away in March 2018, by naming an annual National DNA Day lecture at the National Institutes of Health (NIH) in her honor.
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… by insurers. Visit NHGRI's Genome Statue and Legislation Database  to search for these laws …