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About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that … of genomics research in our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI considers the ethical, …
News Release
NIH issues a final Genomic Data Sharing policy to speed the translation of data into knowledge, improve health and protect patient privacy.
… Health has issued a final NIH Genomic Data Sharing (GDS) policy to promote data sharing as a way to speed the … of research participants. The final policy was posted in the Federal Register Aug. 26, 2014 and published in the … oversight of the GDS policy, including policy needs and issues related to data submission and access. The committees …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of … … NHGRI-ASHG Genetics and Public Policy Fellowship, policy issues in genomics, Cristina Kapustij … The NHGRI-ASHG …
Policies and Guidance
The NHGRI funding policy is aimed at accelerating scientific and medical breakthroughs that improve human health.
… methods and technologies that will accelerate research in understanding the structure of genomes; understanding the … in the ethical, legal and societal implications of genomics research, clinical implementation of genomics, … training and career development. … 2023 Final Funding Policy for NHGRI 2022 Final Funding Policy for NHGRI 2021 …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … studies collecting sensitive data; however, under the new policy, as of October 1, 2017, NIH-funded researchers and … or other identifying characteristics of research subjects in response to legal demands, such as subpoenas. More …
About NHGRI
A list of policies and guidance related to funding, genomic data sharing, website operations and our work environment at the National Human Genome Research Institute.
… Genome Research Institute. ​ … Website Accessibility, NIH Policy, Genomic Data Sharing, NHGRI Policy, NIH Website Policy, Copyright, Privacy Policy … A list of policies and …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… the National Institutes of Health (NIH) issued a notice in its Guide to Grants and Contracts seeking public comment … summary results under the NIH Genomic Data Sharing (GDS) Policy. The proposed update to the GDS policy's data … to update data management of genomic summary results … NIH issues a notice seeking public comment on a proposed update …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… Human Genome Research Institute (NHGRI) websites are in the public domain, unless otherwise indicated. You may … will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for … Copyright Policy, Image Use Policy, Public Domain Imagery, Genomics Information, Genomics Imagery … Text, graphics, …
Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… or to remove comments, that are inconsistent with our policy, at our complete discretion. The views expressed in comments reflect those of the author and do not … Additional guidance as to how NHGRI regards privacy issues can be found at our Privacy Policy . We welcome your …
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … standard information automatically collected and stored in the Web server's logs) unless you choose to provide it to … Research Programs, new initiatives in funding, or general issues related to genomics research and genomic medicine. In