Promoting Safe and Effective Genetic Testing in the United States - Appendix 1

Promoting Safe and Effective Genetic Testing in the United States

Appendix 1

Individuals and Organizations Who Provided Comments to the Task Force

The following individuals and the organizations they either represent or which they listed for identification purposes responded to the Task Force's request for comments on its Interim Principles (distributed on request to the task force Web site at that time) and/or on its Proposed Recommendations (Fed. Reg. 1997; 62:4539-4547). The list includes people who testified at the Task Force's public hearing on its Interim Principles on April 30, 1996, and who submitted written comments on the Interim Principles, the Proposed Recommendations, or both.

Joann Adair, R.N.
Commonwealth of Pennsylvania Department of Health

Nilofer Nina Ahmad, Ph.D.
Wills Eye Hospital

Leslie Alexandre, Dr. P.H.
OncorMed

William Audeh, M.D.
Cedars-Sinai Medical Center

Robert C. Baumiller
Xavier University

Deborah Blacker, M.D., Sc.D.
American Psychiatric Association

Ann Boldt, M.S., C.G.C.
National Society of Genetic Counselors

David T. Bonk
Bristol-Myers Squibb Company

Barbara A. Brenner
Breast Cancer Action

M. Desmond Burke
American Society of Clinical Pathologists

Peter H. Byers, M.D.
American Board of Medical Genetics

Michael Camilleri, M.D.
C. Christopher Hook, M.D.
Mayo Foundation

Robert C. Cefalo, M.D., Ph.D.
American Board of Obstetrics and Gynecology

Ellen Wright Clayton
Vanderbilt University

Jordan J. Cohen, M.D.
Association of American Medical Colleges

Anne Marie Comeau, Ph.D.
New England Regional Newborn Screening Program

Celeste M. Condit
The University of Georgia

Donald R. Coustan, M.D.
J.E. Ferguson
Society of Perinatal Obstetricians

Jo Linder-Crow, Ph.D.
American Psychological Association

Shelly Cummings
University of Chicago Medical Center

George C. Cunningham, M.D., M.P.H.
State of California - Health and Welfare Agency

Mary E. Davidson
Joan Burns
Alliance of Genetic Support Groups

Barbara A. DeBuono, M.D., M.P.H.
State of New York, Dept. of Health

Laurence M. Demers, Ph.D.
American Association for Clinical Chemistry, Inc.

Rochelle Diamond
National Organization of Gay & Lesbian Scientists and Technical Professionals, Inc.

Joyce Dolcourt
Mountain States Regional Genetic Services Network

Louis J. Elsas, II, M.D.
Council of Regional Network for Genetic Services

Ray Erickson
Consumer

Carolyn D. Farrell, M.S., C.N.P., C.G.C.
Roswell Park Cancer Institute

James E. Ferguson, II, M.D.
Member of the Board, Society of Perinatal Obstetricians

Donna G. B. Getz
Consumer

Lynn Godmilow
University of Pennsylvania School of Medicine

Alan Goldhammer, Ph.D.
Biotechnology Industry Organization

Julian Gordon
Abbott Labs

Margaret L. Gulley, M.D.
Association for Molecular Pathology

Barbara Handelin, Ph.D.
Handelin Associates

Janet E. Haskell
Myriad Genetic Laboratories, Inc.

P. Hathaway, M.D.
M. C. Sullivan, R.N., J. D.
R. Flanigan, Ph.D.
The Midwest Bioethics Center

Elliott D. Hillback
Genzyme

Joseph Q. Jarvis, M.D
John P. Johnson, M.D.
Mountain State Regional Genetics Services Network

Haig H. Kazazian, M.D.
University of Pennsylvania

Charles Kull
Consumer

Lisa S. Lehmann, M.D.
Dana-Farber Cancer Institute

Bill Letson
State of Wyoming Department of Health

Sue Levi-Pearl
National Tourette Association

Allen Lichter, M.D.
American Society of Clinical Oncology

Casey Maddren
Consumer

Mary Mahowald
University of Chicago

Mamie Mals
Consumer

Edward R.B. McCabe, M.D., Ph.D.
University of California, Los Angeles

Robert W. McKenna, M.D.
American Society of Clinical Pathologists

Roberta B. Meyer
American Council of Life Insurance

Richard H. Miller, Jr.
Consumer

Ilana Mittman, M.S., C.G.C.
Sinai Hospital of Baltimore

Kathi Mooney, R.N., Ph.D.
Oncology Nursing Society

Ralph Nitkin
NIH-DOE National Coalition for Health Professional Education in Genetics

Vicki Park, Ph.D.
University of Tennessee, Memphis

Kenneth A. Pass, Ph.D.
State of New York Department of Health

Frances A. Pitlick, Ph.D.
Biochemist

Beth A. Pletcher, M.D.
Franklin Desposito, M.D.
American Academy of Pediatrics

George Poste
Tadataka Yamada, M.D.
SmithKline Beecham Pharmaceuticals

Reed Edwin Pyeritz, M.D., Ph.D.
American College of Medical Genetics

Cathie S. Ragovin, M.D.
Massachusetts Breast Cancer Coalition

Pamela J. Reidy
Association of Women's Health
Obstetric and Neonatal Nurses

Margaret "Wendy" Ricker, Ed.D.
Consumer

David Rimoin, M.D., Ph.D.
American College of Medical Genetics

Allen Roses, M.D.
Duke University Medical Center

Mark A. Rothstein
University of Houston Law Center

Peter T. Rowley, M.D.
University of Rochester Medical Center

Lester B. Salans
Sandoz Pharmaceuticals Corporation

Jerry Schenken, M.D.
The Pathology Center

P. John Seward, M.D.
American Medical Association

Larry J. Shapiro, M.D.
The American Society of Human Genetics

Karen Snow, Ph.D.
Mayo Clinic

David A. Sobel, Ph.D.
Confidentiality Matters

Peter Somani, M.D., Ph.D.
Ohio Department of Health

Kathryn Sudduth, C.L.Sp.(C.G.)
Association of Cytogenetic Technologists

Herbert S. Waxman, M.D., F.A.C.P.
American College of Physicians

Joan O. Weiss, M.S.W.
Alliance of Genetic Support Groups

Benjamin S. Wilfond, M.D.
The University of Arizona Health Sciences Center

Philip R. Wyatt, M.D., Ph.D.
North York General Hospital - Genetics

Raymond C. Zastrow, M.D.
College of American Pathologists

Stanley Zinberg, M.D., M.S., F.A.C.O.G.
The American College of Obstetricians & Gynecologists