Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
Pennsylvania | Pennsylvania SB 8 | Coverage and reimbursement | Approved | An Act amending the act of May 17, 1921 (P.L.682, No.284), known as The Insurance Company Law of 1921, in casualty insurance, further providing for coverage for mammographic examinations and diagnost... |
Montana | Montana HB 682 | Neonatal sequencing | Approved | Revise laws related to collection of genetic material for newborn screenings. |
New Hampshire | New Hampshire SB 240 | Genetic data storage/privacy/sharing (medicine) | Approved | Relative to conditions for genetic testing. |
Texas | Texas HB 2545 | Genetic data storage/privacy/sharing (industry) | Approved | Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p... |
Massachusetts | 2018 State Bills Massachusetts 2018 H.3024 | Other Topics | Died | Prohibits a local or state administrative, legislative or regulatory body or instrumentality to engage in a discriminatory land use practice, including discrimination based on genetic information. Died. |
Mississippi | 2013 State Bills Mississippi 2013 HB 311 | Employment Nondiscrimination | Died | Creates a small business health insurance pool. WIth regard to the pool, genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. Died. |
New Jersey | 2017 State Bills New Jersey 2017 S2909 | Employment Nondiscrimination | Died | A person may not refuse to refer a job seeker for employment or to discriminate against a job seeker in compensation or in terms, conditions or privileges of employment to which the job seeker is referred because of certain characteristics, including genetic information. Died. |
California | 2021 State Bills California 2021 AB 1400 | Health Insurance Nondiscrimination | Died | Creates the California Guaranteed Health Care for All program, or CalCare, to provide comprehensive universal single-payer health care coverage and a health care cost control system for the benefit of all residents of the state. Declares that all California residents regardless of various characteristics, including genetic information, are entitled to full and equal accommodations, advantages, facilities, privileges, or services in all health care providers participating in CalCare. Carries over to 2022. |
New York | 2014 State Bills New York 2014 A8472 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers, if recommended by a board-certified geneticist or board-certified genetic counselor. Died. |
Hawaii | 2014 State Bills Hawaii 2014 HB 2532 | Privacy, Research | Died | The bill establishes requirements for the privacy of protected health information, including genetic information. Entities addressed in the bill include health care providers, health care data organizations, health plans, health oversight agencies, public health authorities, employers, insurers, health researchers, or edu�ational institutions. Died. |
Ohio | 2013 State Bills Ohio 2013 SB 88 | Health Insurance Nondiscrimination | Died | This bill creates the Ohio Health Benefit Exchange. The exchange must meet the minimum requirements of the Patient Protection and Affordable Care Act of 2010. Died. |
Maine | 2017 State Bills Maine 2017 LD 1476 | Health Insurance Coverage | Died | As introduced, a health plan must provide coverage for risk assessment for a BRCA gene mutation and genetic counseling or testing, if necessary. Died. |
Vermont | 2021 State Bills Vermont 2021 H233 | Other Topics, Privacy | Died | Protects consumer privacy by requiring that a business that collects genetic data from a Vermont consumer to provide ancestry or similar information protects the data and keeps it confidential. Carries over to 2022. |
Maryland | 2020 State Bills Maryland 2020 SB 738 | Health Insurance Nondiscrimination, Other Topics | Died | Declares that it is the policy of the state to provide affordable health care to all regardless of various factors, including genetic information. Prohibits discrimination based on genetic information by a hospital; a person licensed or otherwise regulated by the Maryland Department of Health; and a person, including a health maintenance organization, that provides health benefits and has a certificate of authority from issued by the Maryland Department of Insurance. Died. |
Minnesota | 2009 State Bills Minnesota 2009 HF 901 | Privacy | Died | This bill amends the definition of genetic information and creates a new section of the state genetic privacy law to separate the provisions that apply to government entities versus any person. The requirements imposed on government entities and any person with respect to written informed consent and appropriate use of genetic information are identical. Measure failed. |
Montana | 2013 State Bills Montana 2013 HB 441 | Health Insurance Coverage | Died | Each group or individual medical expense, cancer, and blanket disability policy, certificate of insurance, and membership contract must provide minimum mammography examination coverage. The definition of minimum mammography examination is amended to include: a) a mammogram each year for a woman who is under 35 years of age if: (i) the woman has two or more first-degree family members diagnosed with breast cancer or ovarian cancer; (ii) genetic tests indicate the woman is at higher risk for breast cancer; or (iii) the woman's physician recommends the test. Died in Standing Committee on April 24, 2013. |
Alabama | 2021 State Bills Alabama 2021 HB 216 | Privacy | Died | Creates the Alabama Consumer privacy Act. Allows a consumer to request that a business: (1) disclose personal information that it collects; (2) delete certain personal information; (3) disclose the sale of certain personal information to third parties; and (4) allow a consumer to opt out of the sale of personal information. Prohibits a business from retaliating against a consumer for making a request for disclosure or for opting out and from selling the personal information of a consumer under 18 years of age. Personal information is defined to include biometric information such as DNA. Died. |
New York | 2007 State Bills New York 2007 A288 | Other Lines of Insurance Nondiscrimination | Died | This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed. |
Florida | 2008 State Bills Florida 2008 SB 2730 | Health Insurance Coverage | Died | This bill requires individual and group health insurers to provide benefits or coverage for periodic colorectal cancer examinations and laboratory tests for individuals over 50 and for individuals under 50 who are considered high risk. Definition of high risk includes individuals who, because of the presence of recognized genetic markers, face a higher than normal risk of colorectal cancer. Measure failed. |
New York | 2019 State Bills New York 2019 A465 | Privacy | Died | Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security the information. Personal information is defined to include biometric information such as DNA. Died. |
Indiana | 2018 State Bills Indiana 2018 SB 352 | Privacy | Died | Establishes requirements regarding student education records, personally identifiable information of a student, and certain other information concerning a student. Personally identifiable information includes a DNA sequence. Died. |
Tennessee | 2018 State Bills Tennessee 2018 SB 2536 | Privacy | Died | Following discovery or notification of a breach of system security by an information holder, the information holder must disclose the breach of system security to any resident of the state whose personal information was, or is reasonably believed to have been, acquired by an unauthorized person. Personal information includes a DNA profile. Died. |
Maryland | 2017 State Bills Maryland 2017 HB 808 | Research | Died | Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died. |
Washington | 2020 State Bills Washington 2020 SB 6664 | Privacy | Died | Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died. |
Maryland | 2021 State Bills Maryland 2021 SB 930 | Privacy | Died | Requires certain businesses that collect a consumer's personal information to provide certain clear and conspicuous notices to the consumer at or before the point of collection. The bill defines biometric information to include an individual's DNA. In the Senate - First Reading Senate Rules. Died. |
Minnesota | 2017 State Bills Minnesota 2017 SF 781 | Health Insurance Nondiscrimination | Died | Establishes the MinnesotaCare program. A managed care organization that contracts with the Commissioner as part of the program may not discriminate or use any policy that has the effect of discriminating against people on the basis of genetic information. Died. |
Nevada | 2009 State Bills Nevada 2009 SB 388 | Health Insurance Nondiscrimination | Died | This bill requires health insurers to comply with the Genetic Information Nondiscrimination Act. Measure failed. |
Arizona | 2020 State Bills Arizona 2020 HB 2729 | Privacy | Died | Establishes requirements for controllers upon the receipt of a verified request from consumers to exercise their rights with respect to the processing of personal data, including genetic data for the purpose of uniquely identifying a person. Died. |
New York | 2009 State Bills New York 2009 S3731 | Employment Nondiscrimination, Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill creates the genetics advisory council. The council, if created, will study and make recommendations on various issues, including unfair discrimination by insurers and employers. Measure failed. |
Florida | 2019 State Bills Florida 2019 HB 1171 | Privacy | Died | Enacts the Parents Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child�s blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. Died. |
New York | 2019 State Bills New York 2019 S4768 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died. |
Kentucky | 2014 State Bills Kentucky 2014 HB 190 | Health Insurance Coverage | Died | Establishes mandated coverage requirements of genetic testing for mutations of the BRCA1 or BRCA2 genes for insured who are at risk of breast cancer or ovarian cancer or who have been diagnosed with breast or ovarian cancer under the age of forty. Died. |
Texas | 2015 State Bills Texas 2015 SB 475 | Privacy | Died | Establishes a personal property right to DNA samples. A person may not, without the informed, written consent of the individual or the individual's legal guardian or authorized representative: (1) collect a DNA sample from an individual; (2) perform a genetic test on an individual's DNA sample; or (3) retain an individual's DNA sample, with certain exceptions. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 901 | Privacy | Died | Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. |
West Virginia | 2021 State Bills West Virginia 2021 HB 2663 | Health Insurance Coverage | Died | Requires health_insurance_coverage of a comprehensive ultrasound screening if a mammogram demonstrates heterogeneous or dense breast tissue if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman�s physician or advanced practice nurse. To House Banking and Insurance 02/23/21. Died. |
Massachusetts | 2019 State Bills Massachusetts 2019 S.98 | Privacy | Died | Amends data security protections to include biometric information, which is defined to include genetic information. 2/13/2020 In senate. Accompanied a study order. Died. |
Mississippi | 2019 State Bills Mississippi 2019 HB 1253 | Privacy | Died | Enacts the Consumer privacy Act. Provides certain rights to consumers such as the right to know the categories and specific pieces of personal information collected and the right to require a business to delete personal information. Personal information is defined to include biometric information such as DNA sequences. 02/05 (H) Died In Committee |
New Jersey | 2020 State Bills New Jersey 2020 A2216 | Other Topics | Died | Prohibits discrimination in health programs or activities based on certain factors, including genetic information. Died. |
Colorado | 2016 State Bills Colorado 2016 HB 1381 | Health Insurance Coverage | Died | Amends the health care coverage law for breast cancer screening by requiring coverage for a person with an increased lifetime risk of breast cancer determined by a risk factor model such as Tyrer-Cuzick, BRCAPro, or Gail. 05/02/2016 In Senate Committee on State, Veterans, & Military Affairs. Postponed Indefinitely. |
New York | 2017 State Bills New York 2017 A1807 | Health Insurance Coverage | Died | Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. |
Idaho | 2013 State Bills Idaho 2013 HB 194 | Other Topics | Died | Worker's compensation is payable for disability or death of an employee resulting from occupational diseases, including breast cancer, if certain criteria are met. Criteria includes: (1) diagnosis of breast cancer after five years of employment, before the age of 40, without BRCA 1 or BRCA 2 genetic predisposition; and (2) the disease must not have been revealed during an initial employment medical screening exam or during any subsequent medical review. Died. |
Oklahoma | 2020 State Bills Oklahoma 2020 HB 2867 | Employment Nondiscrimination | Died | Prohibits discrimination in the selection of job applications, interviewing of job applicants, hiring of job applicants, firing of employees, treatment of employees, or payment of wages on the basis of genetic information. Died. |
Maryland | 2009 State Bills Maryland 2009 SB 54 | Privacy | Died | This bill restricts access to, use of and retention of DNA samples and disclosure of DNA test results without consent with some exemptions. The bill also provides personal property rights to DNA samples and DNA test results and requires the health department to develop a uniform written informed consent form. Penalties are set forth for violations. Measure failed. |
Virginia | 2015 State Bills Virginia 2015 HB 1669 | Privacy | Died | This bill regulates the collection and maintenance of personally identifiable information, including DNA, by education agencies. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.2176 | Health Insurance Coverage | Died | Requires health_insurance_coverage of screening breast ultrasounds and breast MRI, in addition to mammograms, if the patient is at increased risk of cancer based on certain factors such as positive genetic testing. 7/18/2018 Accompanied a study order, see H4778. |
Mississippi | 2007 State Bills Mississippi 2007 HB 233 | Health Insurance Nondiscrimination | Died | This bill creates the Genetic Information Nondiscrimination in Health Insurance Act, which prohibits health benefits plans from denying, refusing or canceling health insurance benefits or coverage on the basis of genetic information or a request or receipt of genetic services. The bill also prohibits health benefit plan insurers from requesting or requiring a genetic test and from disclosing genetic information without prior written authorization. Penalties for violations are set forth. Measure failed. |
New Hampshire | 2021 State Bills New Hampshire 2021 HB 601 | Privacy | Died | When an individual consents to receive assistance from a health or social service agency in the state, the consent given to the initial health or social service agency to use the individual's personal information may not be transferred to or retained by any other health or social service agency, network, or entity. No health or social service agency in the state may require a individual's consent to share personal information with another health or social service agency in the state or another state as a prerequisite for such individual to receive services from such health or social service agency, including consent to share details regarding which health or social service agency the individual has received help from in the past and associated information related to that interaction. A health or social service agency must explicitly and in writing inform any individual seeking such assistance that lack of consent will not affect the individual's ability to receive health or social services from the agency and that the individual will not be otherwise penalized. Personal information is defined to include DNA. Hearing on 2/08/2021. Carries over to 2022. |
California | 2015 State Bills California 2015 AB 170 | Use of Residual Newborn Screening Specimens | Died | States that a newborn sample may not be used for medical research if a parent or guardian of the newborn child objects to the testing program. The bill would require the department to provide information about the testing program, and to obtain a form signed by the parent or guardian acknowledging receiving information regarding the storage, retention, and use of the newborn child�s blood sample for medical research. Died. |
New York | 2013 State Bills New York 2013 A2931 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. The bill addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex; requires reporting certain information relating to the collection of data, and provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Died. |
Florida | 2021 State Bills Florida 2021 SB 582 | Privacy | Died | Creates the Parents' Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child's blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. 4/21/2021 Senate Laid on Table, companion bill passed, see HB 241 (Ch. 2021-199) SJ 547. |
Last updated: February 8, 2024