Dr. Hull's research interests focus primarily on the intersection between research ethics and new technological developments. Ongoing projects focus on secondary genomic research findings, informed consent and datasharing for research for genomic research, the role and limits of centralized Institutional Reveiw Board (IRB) review of multisite research, diversifying genomic research and clinical/diagnostic tools, and developing collaborative research ethics training programs with American Indian and Alaska Native Tribal IRBs and research review committees.
Dr. Hull conducts her research through a collaborative venture between the National Human Genome Research Institute (NHGRI) and the NIH Clinical Center's Department of Bioethics. The Section on the Ethics of Genetics and Emerging Technologies addresses a range of ethical issues, particularly those relevant to research with collections of human biological samples and data, disclosure of genetic results to study participants and clinical patients; legal and regulatory issues raised by evolving genomic sequencing technology; and issues raised by use of genetics in reproduction and pediatric care.
Sara Chandros Hull received her undergraduate degree in molecular cell biology and genetics from Brandeis University and earned a Ph.D. from the Johns Hopkins Program in Law, Ethics and Health in 1999. Her graduate training focused on social science research methods to conduct empirical research in bioethics and health policy. During her graduate studies, Dr. Hull also worked on the staff of President Clinton's Advisory Committee on Human Radiation Experiments.
In addition to her research program, Dr. Hull directs the Bioethics Core at NHGRI, which provides bioethics education, consultation, and administrative support to investigators in the intramural research program. She has been a member of the NHGRI Institutional Review Board since 2003 and currently serves as its chair.
Posted: July 7, 2017