Following the 2017 ELSI Congress and entering a new phase of strategic planning for the National Human Genome Research Institute (NHGRI), the Ethical, Legal and Social Implications (ELSI) Research Program will host two webinars in the next few weeks to gather ideas from the research community on needs and resources to increase the reach, impact and transparency of ELSI research.
The webinars will include a brief introduction by NHGRI staff followed by a moderated discussion open to all webinar participants. An agenda, including discussion questions and webinar details, will be distributed one week prior to the first webinar.
We are holding two webinars to accommodate schedules. The same presentations and discussion topics will be covered on March 13th and March 26th. Please RSVP using the web registration.
If you would like to provide us feedback in lieu of, or in addition to attending the webinar, you can respond to the discussion questions via email submitted to email@example.com
RSVP Form: https://tinyurl.com/ELSIWebinar
Tuesday, March 13 from 2:00 - 3:30 p.m. Eastern (1p.m. Central/ 12 p.m. Mountain/ 11 a.m. Pacific)
Meeting number (access code): 620 532 794
Meeting password: ELSI2018
Monday, March 26 from 3:00 - 4:30 p.m. Eastern (2 p.m. Central/1p.m. Mountain/12 p.m. Pacific)
Meeting number (access code): 624 332 333
Meeting password: ELSI2018
The Ethical, Legal and Social Implications (ELSI) Research Program will host two webinars in the next few weeks to gather ideas from the research community on needs and resources to increase the reach, impact, and transparency of ELSI research. These webinars follow on the heels of the 2017 ELSI Congress and the launch of a new stage of strategic planning at the National Human Genome Research Institute (NHGRI).
There are four major topics on which we would like to gather perspectives. First, despite the broad applicability of ELSI research to many areas of clinical and biomedical research, ELSI findings and publications are often less known and utilized outside of genomics. We do not always succeed in putting ELSI work in the hands of those who can use it. Second, it can be difficult to establish the rigor and reproducibility of data, compare findings or conduct cross-study analyses if measures and instruments are not publicly available. Third, there is currently no systematic way of synthesizing and/or disseminating ELSI findings across studies. This is particularly difficult given the multidisciplinary nature of ELSI work.
Finally, dialogues on current topics often seem uninformed by previous foundational research. For example, many issues arising out of the use of gene editing technologies were explored, at least in part, more than a decade ago, but that foundational scholarship is seldom drawn upon by those entering the field. This webinar will provide an opportunity for attendees to provide feedback and input to NHGRI staff on these and other challenges facing the ELSI research community.
20 minutes - Introduction
20 minutes - Discussion: Increasing the reach, impact, and transparency of ELSI research
40 minutes - Discussion: Needs and resources
10 minutes - Summary and closing remarks
Last Updated: March 12, 2018