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COVIDcode Study

Learning more about the genetic contributions to the severity of disease of COVID-19.  

Coronavirus 2019 (COVID-19) is a serious public health problem.  We think that genetics may play a role in how serious the illness becomes in certain people.  Genes are the instructions that our body use to grow and develop. Variations in a person’s genes can cause medical conditions and can be the reason why some people get sicker than others.

The goal of this study is to learn more about the genetic contributions to the severity of disease of COVID-19.  We hope that we can use this information to develop therapies to reduce the severity of symptoms of COVID-19 in some people.

Who can join?

Anyone who has tested positive for SARS-CoV-2 infection may be eligible to join.  We will use the clinical information and samples of people who test positive for our main analyses. 

  • Who can join?

    Anyone who has tested positive for SARS-CoV-2 infection may be eligible to join.  We will use the clinical information and samples of people who test positive for our main analyses. 

What is involved?

If you join this study, we will work with you or your healthcare provider to fill out a survey about your personal health history and experience with symptoms of COVID-19.  This should take less than 30 minutes to complete.  We will also ask you to donate a blood sample for research use. We will use this to study your DNA.

Privacy and confidentiality are very important to us. We know this is especially important for NIH Employees and their families.  

If you are an NIH Employee (including contractors) or are related to an NIH employee, please refer to the For NIH Employees section below.

All information shared with us will be coded.  We will not return individual results. After you fill out the survey and donate your blood sample, we plan very limited continued contact with you only to get updates on your health.

We intend for our study to help more patients benefit from this research.  If you are interested, please contact the COVIDCode Study Team at COVIDcode@mail.nih.gov or (240) 274-6777.

  • What is involved?

    If you join this study, we will work with you or your healthcare provider to fill out a survey about your personal health history and experience with symptoms of COVID-19.  This should take less than 30 minutes to complete.  We will also ask you to donate a blood sample for research use. We will use this to study your DNA.

    Privacy and confidentiality are very important to us. We know this is especially important for NIH Employees and their families.  

    If you are an NIH Employee (including contractors) or are related to an NIH employee, please refer to the For NIH Employees section below.

    All information shared with us will be coded.  We will not return individual results. After you fill out the survey and donate your blood sample, we plan very limited continued contact with you only to get updates on your health.

    We intend for our study to help more patients benefit from this research.  If you are interested, please contact the COVIDCode Study Team at COVIDcode@mail.nih.gov or (240) 274-6777.

For NIH Employees

NIH employees, contractors, special volunteers, trainees and guest researchers may join in NIH studies if they wish to do so.  You should not feel compelled or required to participate in this or any other NIH study.  We will take special steps to ensure your privacy and confidentiality if you decide to take part in the study.  These include:

  • Training all study staff about the procedures we have in place to protect your confidentiality and privacy
  • Giving your sample and information a code number, tightly restricting access to the people who can link your code number with your personal information, and using that code number instead of your personal information whenever possible
     

Please review Appendix C of the NIH SOP that specifically discusses staff involvement in research studies.  Read the entire SOP.

  • For NIH Employees

    NIH employees, contractors, special volunteers, trainees and guest researchers may join in NIH studies if they wish to do so.  You should not feel compelled or required to participate in this or any other NIH study.  We will take special steps to ensure your privacy and confidentiality if you decide to take part in the study.  These include:

    • Training all study staff about the procedures we have in place to protect your confidentiality and privacy
    • Giving your sample and information a code number, tightly restricting access to the people who can link your code number with your personal information, and using that code number instead of your personal information whenever possible
       

    Please review Appendix C of the NIH SOP that specifically discusses staff involvement in research studies.  Read the entire SOP.

Last updated: April 20, 2020