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COVIDcode Study

Learning more about the genetic contributions to the severity of COVID-19 symptoms.

Coronavirus 2019 (COVID-19, or SARS-CoV-2) is a serious public health problem, and genetics may play a role in how serious the illness becomes in certain people. Genes are the instructions that our body uses to grow and develop. Variations in our genes can cause medical conditions and may be the reason why some people get sicker than others.

This study aims to learn more about the genetic contributions to the severity of COVID-19. We hope to use this information to develop therapies that reduce the severity of COVID-19 symptoms in some people.

Who can join?

Anyone who has tested positive for SARS-CoV-2 infection may be eligible to join. We will use the clinical information and samples of people who test positive for our main analyses.   

  • Who can join?

    Anyone who has tested positive for SARS-CoV-2 infection may be eligible to join. We will use the clinical information and samples of people who test positive for our main analyses.   

What is involved?

If you join this study, we will:

  • Ask you to donate a blood sample for research use. We will use this to study your DNA.
  • Work with you or your healthcare provider to fill out a survey about your personal health history and experience with your COVID-19 symptoms. This should take less than 30 minutes to complete.
  • Contact you one time up to a year after your enrollment to complete a follow-up survey about your ongoing experience with COVID-19 symptoms.


We offer compensation of up to $70 for completing these study activities.

Privacy and confidentiality are very important to us. We know this is especially important for NIH employees and their families.  

If you are an NIH employee (including contractors) or are related to an NIH employee, please refer to the For NIH Employees section below.

All information shared with us will be coded. We will not return individual results. After you fill out the survey and donate your blood sample, we will limit our continued contact with you to only obtain updates on your health.

We intend for this study to help other patients benefit from this research. If you are interested, please fill out the volunteer survey or contact us at COVIDcode@nih.gov or (240) 274-6777. Participation is completely voluntary. Indicating interest in the study does not obligate you to participate, and you can withdraw at any time.

For more information:
COVIDcode Study Team
Phone: (240) 274-6777
Email: COVIDcode@mail.nih.gov

For more information on other COVID-19 clinical trials:

  • What is involved?

    If you join this study, we will:

    • Ask you to donate a blood sample for research use. We will use this to study your DNA.
    • Work with you or your healthcare provider to fill out a survey about your personal health history and experience with your COVID-19 symptoms. This should take less than 30 minutes to complete.
    • Contact you one time up to a year after your enrollment to complete a follow-up survey about your ongoing experience with COVID-19 symptoms.


    We offer compensation of up to $70 for completing these study activities.

    Privacy and confidentiality are very important to us. We know this is especially important for NIH employees and their families.  

    If you are an NIH employee (including contractors) or are related to an NIH employee, please refer to the For NIH Employees section below.

    All information shared with us will be coded. We will not return individual results. After you fill out the survey and donate your blood sample, we will limit our continued contact with you to only obtain updates on your health.

    We intend for this study to help other patients benefit from this research. If you are interested, please fill out the volunteer survey or contact us at COVIDcode@nih.gov or (240) 274-6777. Participation is completely voluntary. Indicating interest in the study does not obligate you to participate, and you can withdraw at any time.

    For more information:
    COVIDcode Study Team
    Phone: (240) 274-6777
    Email: COVIDcode@mail.nih.gov

    For more information on other COVID-19 clinical trials:

For NIH Employees

NIH employees, contractors, special volunteers, trainees, and guest researchers may join in NIH studies if they wish to do so. You should not feel compelled or required to participate in this or any other NIH study. We will take special steps to ensure your privacy and confidentiality if you decide to take part in the study. These include:

  • Training all study staff about the procedures we have in place to protect your confidentiality and privacy.
  • Giving your sample and information a code number, tightly restricting access to the people who can link your code number with your personal information and using that code number instead of your personal information whenever possible.
     

NIH FAQs for NIH Staff Who are Considering Participation in NIH Research

NIH Leave Policy for NIH Employees Participating in Medical Research Studies

  • For NIH Employees

    NIH employees, contractors, special volunteers, trainees, and guest researchers may join in NIH studies if they wish to do so. You should not feel compelled or required to participate in this or any other NIH study. We will take special steps to ensure your privacy and confidentiality if you decide to take part in the study. These include:

    • Training all study staff about the procedures we have in place to protect your confidentiality and privacy.
    • Giving your sample and information a code number, tightly restricting access to the people who can link your code number with your personal information and using that code number instead of your personal information whenever possible.
       

    NIH FAQs for NIH Staff Who are Considering Participation in NIH Research

    NIH Leave Policy for NIH Employees Participating in Medical Research Studies

Last updated: October 26, 2020